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父母对与囊性纤维化患儿兄弟姐妹适应相关的风险和保护因素的认知。

Parental perceptions of risk and protective factors associated with the adaptation of siblings of children with cystic fibrosis.

作者信息

O'Haver Judith, Moore Ida M, Insel Kathleen C, Reed Pamela G, Melnyk Bernadette Mazurek, Lavoie Michael

机构信息

Arizona State University, College of Nursing and Health Care Innovation, Phoenix, AZ, USA.

出版信息

Pediatr Nurs. 2010 Nov-Dec;36(6):284-91; quiz 292.

Abstract

When a child is diagnosed with a chronic, life-threatening illness, there is a significant impact on the healthy siblings. Few studies have addressed the adaptation of well siblings in diagnoses other than cancer. The purpose of this descriptive correlational study was to examine the relationships between the risk and protective factors that affect the psychological adaptation of healthy siblings of a child with cystic fibrosis. Findings from this study suggest family environment, especially parental stress and perceived social support, may affect the adaptation of the well sibling. Adolescent well siblings were more at risk for environmental influences than their younger counterparts.

摘要

当一个孩子被诊断出患有慢性、危及生命的疾病时,对健康的兄弟姐妹会产生重大影响。很少有研究探讨除癌症以外的其他疾病诊断中健康兄弟姐妹的适应情况。这项描述性相关性研究的目的是检验影响囊性纤维化患儿健康兄弟姐妹心理适应的风险因素和保护因素之间的关系。这项研究的结果表明,家庭环境,尤其是父母的压力和感知到的社会支持,可能会影响健康兄弟姐妹的适应情况。与年幼的健康兄弟姐妹相比,青少年健康兄弟姐妹受环境影响的风险更大。

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