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癌症患儿兄弟姐妹参与治疗支持小组的经历。

The experience of therapeutic support groups by siblings of children with cancer.

作者信息

Nolbris Margaretha, Abrahamsson Jonas, Hellström Anna-Lena, Olofsson Lisa, Enskär Karin

机构信息

Queen Silvia Children's Hospital, Sahlgrenska Academy at Göteborg University, Institute of Health Care Sciences, Göteborg, Sweden.

出版信息

Pediatr Nurs. 2010 Nov-Dec;36(6):298-304; quiz 305.

PMID:21291046
Abstract

When a child is diagnosed with cancer, the whole family, including siblings, lives in fear of how the cancer will affect the sick child and how it will influence other family members. The aim of this article is to describe the experiences expressed by the siblings in a support group environment when their families have or have had a child diagnosed with cancer. Fifteen siblings 8 to 19 years of age with a brother or sister who was receiving treatment for or had died from cancer were interviewed after participating in therapeutic support groups. These interviews were conducted two weeks after the last group interaction and were analyzed using qualitative content analysis. Regardless of gender and age, the siblings felt a sense of belonging and comfort by being in a group, which they appreciated. They were able to share their experiences and help each other with advice and encouragement. They all drew strength from each other. A therapeutic support group for siblings of children with cancer is beneficial. Follow-up interviews with the siblings indicated they found the groups helpful in coping with their situation.

摘要

当一个孩子被诊断出患有癌症时,整个家庭,包括兄弟姐妹,都会生活在恐惧之中,担心癌症会如何影响患病的孩子,以及它将如何影响其他家庭成员。本文的目的是描述当家庭中有孩子被诊断出患有癌症时,兄弟姐妹在支持小组环境中所表达的经历。15名年龄在8至19岁之间的兄弟姐妹,他们的兄弟姐妹正在接受癌症治疗或已因癌症去世,在参加治疗性支持小组后接受了采访。这些采访在最后一次小组互动两周后进行,并采用定性内容分析法进行分析。无论性别和年龄,这些兄弟姐妹都因身处一个他们所珍视的小组而有归属感和舒适感。他们能够分享自己的经历,并通过建议和鼓励互相帮助。他们都从彼此身上汲取力量。为患有癌症儿童的兄弟姐妹设立的治疗性支持小组是有益的。对这些兄弟姐妹的后续采访表明,他们发现这些小组有助于应对自己的处境。

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1
The experience of therapeutic support groups by siblings of children with cancer.癌症患儿兄弟姐妹参与治疗支持小组的经历。
Pediatr Nurs. 2010 Nov-Dec;36(6):298-304; quiz 305.
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引用本文的文献

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Int J Qual Stud Health Well-being. 2019 Dec;14(1):1586625. doi: 10.1080/17482631.2019.1586625.
2
Long-term follow-up of paediatric anorectal anomalies and the role and efficacy of parent support groups for such conditions.小儿肛肠畸形的长期随访以及家长支持团体在这类病症中的作用和效果。
Pediatr Surg Int. 2013 Sep;29(9):931-6. doi: 10.1007/s00383-013-3360-2.
3
A web-based programme for person-centred learning and support designed for preschool children with long-term illness: a pilot study of a new intervention.
一项针对患有长期疾病的学龄前儿童的以个人为中心的学习与支持的网络项目:一项新干预措施的试点研究
Nurs Res Pract. 2012;2012:326506. doi: 10.1155/2012/326506. Epub 2012 Dec 30.