“我们在一起不可战胜”：互联网个人博客中年轻姐妹对兄弟癌症的叙述。
"TOGETHER WE ARE UNBEATABLE": young sisters' narration of a sibling's cancer in personal blogs on the internet.
机构信息
a Faculty of Health and Occupational Studies/Department of' Social Work and Psychology , University of Gävle , Gävle , Sweden.
b Clinical Psychology in Healthcare, Department of Children's and Women's Health , Uppsala University , Uppsala , Sweden.
出版信息
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1586625. doi: 10.1080/17482631.2019.1586625.
PURPOSE
Siblings of children and young people diagnosed with cancer are commonly reluctant to talk about their experiences due to the circumstances of the illness situation. This article aims to bring voice to experience and inform practice by investigating what and how three young sisters narrate about their illness experiences in personal blogs on the Internet.
METHODS
A narrative methodology for the analysis of life storytelling was applied primarily to investigate the sister's coping strategies and support needs.
RESULTS
The results show how the sisters constructed their own space for narration, with the main aims of expressing their feelings about the illness and seeking social support. The telling of their experiences along with encouraging comments from a supportive audience enabled a change in position from feeling neglected and silenced to being a recognized agent and caring sister. In addition, through their narrative coping the sisters went from powerless to powerful in their position in relation to cancer.
CONCLUSION
The results highlight the need for siblings to be able to narrate experience in a supportive context, where the processing of their relationship with the ill sister/brother should be understood as an important element of their coping with cancer and death.
目的
由于患病情况的原因，被诊断患有癌症的儿童和青少年的兄弟姐妹通常不愿意谈论他们的经历。本文旨在通过调查三位年轻姐妹在互联网个人博客中叙述自己的疾病经历的内容和方式，为了解体验和指导实践提供帮助。
方法
主要采用叙事方法分析生活故事，以调查姐妹的应对策略和支持需求。
结果
结果表明，姐妹们如何构建自己的叙述空间，主要目的是表达对疾病的感受并寻求社会支持。叙述自己的经历以及来自支持性听众的鼓励评论，使她们从被忽视和沉默的感觉转变为被认可的代理人和关心他人的姐妹。此外，通过叙事应对，姐妹们在与癌症相关的地位上从无能为力变得强大。
结论
研究结果强调了兄弟姐妹需要在支持性的环境中叙述自己的经历，其中理解他们与患病姐妹/兄弟的关系处理是他们应对癌症和死亡的重要因素。
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