Smith Carol E, Piamjariyakul Ubolrat, Yadrich Donna Macan, Ross Vicki M, Gajewski Byron, Williams Arthur R
School of Nursing and Preventive Medicine Department, University of Kansas, Kansas City, KS, USA.
Nurs Econ. 2010 Nov-Dec;28(6):393-9, 414.
Family caregivers perform a significant role in the care of patients with chronic illnesses and prescribed life-long complex home care treatments. Both quantitative and qualitative data from this study suggest the mental health burdens and financial costs of home parenteral nutrition (HPN) caregiving are extensive. In this study, the variability in HPN out-of-pocket expenses and the uncertainty of incurring such extensive costs created additional financial worries within already stressed families. Based on these data, interventions to improve caregivers' sleepiness, depression, and physical health could be hypothesized to improve both patients' and caregivers' quality of life and reduce the frequency of patients' catheter-related infections. These specific nursing interventions also could improve caregiver health and subsequently reduce the costs of caregivers' health care.
家庭照顾者在慢性病患者的护理以及规定的终身复杂家庭护理治疗中发挥着重要作用。本研究的定量和定性数据均表明，家庭肠外营养（HPN）护理带来的心理健康负担和经济成本是巨大的。在本研究中，HPN自付费用的差异以及产生如此高额费用的不确定性，在本就压力重重的家庭中引发了更多经济担忧。基于这些数据，可以推测，旨在改善照顾者嗜睡、抑郁和身体健康状况的干预措施，可能会提高患者和照顾者的生活质量，并减少患者导管相关感染的发生率。这些具体的护理干预措施还可以改善照顾者的健康状况，进而降低照顾者的医疗保健成本。
