Vyhnálek M, Vávrová V
Research Institute for Child Development, Faculty of Pediatrics, Prague, Czechoslovakia.
Acta Univ Carol Med (Praha). 1990;36(1-4):235-9.
From the psychological point of view we focused our attention to the study of chosen dimensions of the family systems in a group of 72 parents a 27 matrimonial pairs. The typology of the families was carried out, familial and matrimonial strengths the incidence of life events in the family, the way of coping with unfavourable influences inside and outside the family and the quality of life were followed up. We used the battery of tests by Olson and coworkers (1983): FACES II (Family Adaptatibility and Cohesion Evaluation Scales), Family Strengths, ENRICH, FILE (Family Inventory of Life Events), F-COPES (Family Coping Strategies), QL (Quality of Life). As for family functions in CF the risk groups are young marriages up to the 6th year of duration, age of parents up to 30 years, parents older than 41 years, families with 1 child only, the families where the disease has a severe course. Optimal situation in familial functions is observed in parents aged 31 to 40 years, and in families with 2 children. Valuable can be the finding that 3 age differentiated groups of parents (up to 30 years) show a typical adaptation behaviour to the presence of severe hereditary chronic and lethal disease of the child.
从心理学角度出发，我们将注意力集中在对72位父母（27对夫妻）组成的群体中家庭系统特定维度的研究上。我们进行了家庭类型分析，追踪了家庭和婚姻的优势、家庭生活事件的发生率、应对家庭内外不利影响的方式以及生活质量。我们采用了奥尔森及其同事（1983年）编制的一系列测试：FACES II（家庭适应性和凝聚性评估量表）、家庭优势量表、ENRICH、FILE（家庭生活事件量表）、F - COPES（家庭应对策略量表）、QL（生活质量量表）。至于囊性纤维化（CF）患者家庭的家庭功能，风险群体包括婚姻持续时间达6年的年轻夫妻、父母年龄在30岁以下、41岁以上的父母、仅有一个孩子的家庭以及疾病病程严重的家庭。在31至40岁的父母以及有两个孩子的家庭中，观察到了家庭功能的最佳状态。有价值的发现是，3个年龄有差异的父母群体（30岁以下）对孩子患有严重遗传性慢性致命疾病表现出典型的适应行为。
