Van Brunt Kate, Matza Louis S, Classi Peter M, Johnston Joseph A
Center for Health Outcomes Research at United BioSource Corporation, Bethesda, MD, USA.
Patient Prefer Adherence. 2011 Jan 17;5:33-43. doi: 10.2147/PPA.S6389.
A growing body of literature has highlighted the importance of considering patient preferences as part of the medical decision-making process. The purpose of the current review was to identify and summarize published research on preferences related to attention-deficit/hyperactivity disorder (ADHD) and its treatment, while suggesting directions for future research.
A literature search identified 15 articles that included a choice-based assessment of preferences related to ADHD.
The 15 studies were grouped into four categories based on preference content: preference for a treatment directly experienced by the respondent or the respondent's child; preference for general treatment approaches; preference for a specific treatment attribute or outcome; and preference for aspects of ADHD-related treatment. Preference assessment methods ranged from global single items to detailed choice-based procedures, with few studies using rigorously developed assessment methods. Respondents included patients with ADHD, clinicians, parents, teachers, and survey respondents from the general population. Factors influencing preference include treatment characteristics, effectiveness for specific symptoms, side effects, and respondent demographics. Minimal research has examined treatment preferences of adults with ADHD.
Because there is no dominant treatment known to be the first choice for all patients, ADHD is a condition for which individual preferences can play an important role when making treatment decisions for individual patients. Given the potential role of preferences in clinical decision-making, more research is needed to better understand the preferences of patients with ADHD and other individuals who are directly affected by the disorder, such as parents and teachers.
越来越多的文献强调了将患者偏好作为医疗决策过程一部分的重要性。本综述的目的是识别并总结已发表的关于注意力缺陷多动障碍(ADHD)及其治疗相关偏好的研究,同时为未来研究提出方向。
文献检索确定了15篇文章,这些文章包含了基于选择的ADHD相关偏好评估。
这15项研究根据偏好内容分为四类:对受访者或受访者孩子直接体验过的治疗的偏好;对一般治疗方法的偏好;对特定治疗属性或结果的偏好;以及对ADHD相关治疗方面的偏好。偏好评估方法从整体单项到基于详细选择的程序不等,很少有研究使用严格开发的评估方法。受访者包括ADHD患者、临床医生、家长、教师以及普通人群的调查受访者。影响偏好的因素包括治疗特征、对特定症状的有效性、副作用和受访者人口统计学特征。对成年ADHD患者的治疗偏好研究极少。
由于不存在一种对所有患者来说都被公认为首选的主导治疗方法,ADHD是一种在为个体患者做出治疗决策时个人偏好可发挥重要作用的病症。鉴于偏好在临床决策中的潜在作用,需要更多研究来更好地了解ADHD患者以及其他直接受该病症影响的个体(如家长和教师)的偏好。