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生殖器银屑病患者的生活质量和性健康。

Quality of life and sexual health in patients with genital psoriasis.

机构信息

Departments of Dermatology, Radboud University Nijmegen Medical Centre, HB Nijmegen, The Netherlands.

出版信息

Br J Dermatol. 2011 Jun;164(6):1247-55. doi: 10.1111/j.1365-2133.2011.10249.x. Epub 2011 May 13.

Abstract

BACKGROUND

Knowledge about quality of life and sexual health in patients with genital psoriasis is limited.

OBJECTIVES

We studied quality of life and sexual function in a large group of patients with genital psoriasis by means of validated questionnaires. In addition, we evaluated whether sufficient attention is given by healthcare professionals to sexual problems in patients with psoriasis, as perceived by the patients.

METHODS

A self-administered questionnaire was sent to 1579 members of the Dutch Psoriasis Association. Sociodemographic patient characteristics, medical data and scores of several validated questionnaires regarding quality of life (Dermatology Life Quality Index) and sexual health (Sexual Quality of Life Questionnaire for use in Men, International Index of Erectile Function, Female Sexual Distress Scale and Female Sexual Function Index) were collected and analysed.

RESULTS

This study (n = 487) shows that psoriasis has a detrimental effect on quality of life and sexual health. Patients with genital lesions reported even significantly worse quality of life than patients without genital lesions (mean ± SD quality of life scores 8·5 ± 6·5 vs. 5·5 ± 4·6, respectively, P < 0·0001). Sexual distress and dysfunction are particularly prominent in women (reported by 37·7% and 48·7% of the female patients, respectively). Sexual distress is especially high when genital skin is affected (mean ± SD sexual distress score in patients with genital lesions 16·1 ± 12·1 vs. 10·1 ± 9·7 in patients without genital lesions, P = 0·001). The attention given to possible sexual problems in the psoriasis population by healthcare professionals is perceived as insufficient by patients.

CONCLUSIONS

In addition to quality of life, sexual health is diminished in a considerable number of patients with psoriasis and particularly women with genital lesions have on average high levels of sexual distress. We underscore the need for physicians to pay attention to the impact of psoriasis on psychosocial and sexual health when treating patients for this skin disease.

摘要

背景

生殖器银屑病患者的生活质量和性健康知识有限。

目的

我们通过验证过的问卷对大量生殖器银屑病患者进行了生活质量和性功能研究。此外,我们还评估了患者认为医疗保健专业人员对银屑病患者的性问题的关注程度。

方法

向 1579 名荷兰银屑病协会成员发送了一份自我管理问卷。收集并分析了社会人口统计学患者特征、医疗数据以及几个经过验证的问卷的评分,这些问卷涉及生活质量(皮肤病生活质量指数)和性健康(男性使用的性健康问卷、国际勃起功能指数、女性性困扰量表和女性性功能指数)。

结果

本研究(n=487)表明,银屑病对生活质量和性健康有不利影响。有生殖器病变的患者报告的生活质量甚至比没有生殖器病变的患者更差(分别为平均±SD 生活质量评分 8.5±6.5 与 5.5±4.6,P<0.0001)。性困扰和性功能障碍在女性中尤为突出(分别有 37.7%和 48.7%的女性患者报告)。当生殖器皮肤受到影响时,性困扰尤其高(生殖器病变患者的平均±SD 性困扰评分 16.1±12.1 与无生殖器病变患者的 10.1±9.7 相比,P=0.001)。患者认为医疗保健专业人员对银屑病患者群体中可能存在的性问题的关注程度不足。

结论

除生活质量外,相当数量的银屑病患者的性健康也受到损害,特别是有生殖器病变的女性患者平均性困扰水平较高。我们强调医生在治疗这种皮肤病患者时,需要关注银屑病对心理社会和性健康的影响。

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