Daudén E, Conejo J, García-Calvo C
Sección de Dermatología, Hospital Universitario de la Princesa, Madrid, España.
Actas Dermosifiliogr. 2011 May;102(4):270-6. doi: 10.1016/j.ad.2010.04.018. Epub 2011 Feb 18.
The aims of this study were to determine the impact of psoriasis on patient quality of life, to analyze differences in perception between patients and physicians regarding quality of life, treatment satisfaction, and patient needs, and to assess the physician-patient relationship.
A multicenter, observational, cross-sectional study was undertaken in which a representative group of dermatologists-working in hospitals and outpatient clinics throughout Spain-and their patients with a diagnosis of psoriasis completed specifically designed questionnaires. The questionnaires covered patient demographics, disease characteristics, impact of the disease on quality of life, treatment of psoriasis, and the relationship between patient and dermatologist.
A total of 151 dermatologists from throughout Spain included a mean of 5 patients each. The analysis included 771 questionnaires completed by dermatologists and 732 completed by patients. Two-thirds of patients had moderate-to-severe psoriasis with a major impact on quality of life, particularly in relation to emotional wellbeing. Nevertheless, quality of life was only assessed routinely and systematically by 19.9% of dermatologists. Overall, 47% of patients reported being quite satisfied or very satisfied with the treatment they received. No significant differences were observed between patients and dermatologists on the aspects analyzed.
Our results highlight the substantial impact of psoriasis on patient quality of life and the consequent need for systematic quality-of-life assessment in affected patients. Patients reported a high level of satisfaction with the care provided by dermatologists and the treatment received. There was good agreement between patients and dermatologists in their assessment of the variables analyzed.
本研究旨在确定银屑病对患者生活质量的影响，分析患者与医生在生活质量、治疗满意度及患者需求方面认知的差异，并评估医患关系。
开展了一项多中心、观察性横断面研究，来自西班牙各地医院和门诊诊所的一组有代表性的皮肤科医生及其诊断为银屑病的患者填写了专门设计的问卷。问卷涵盖患者人口统计学信息、疾病特征、疾病对生活质量的影响、银屑病的治疗以及患者与皮肤科医生的关系。
来自西班牙各地的151名皮肤科医生平均每人纳入5名患者。分析包括皮肤科医生填写的771份问卷和患者填写的732份问卷。三分之二的患者患有中度至重度银屑病，对生活质量有重大影响，尤其是在情绪健康方面。然而，只有19.9%的皮肤科医生会定期系统地评估生活质量。总体而言，47%的患者表示对所接受的治疗相当满意或非常满意。在分析的各方面，患者与皮肤科医生之间未观察到显著差异。
我们的结果凸显了银屑病对患者生活质量的重大影响，以及对受影响患者进行系统生活质量评估的必要性。患者对皮肤科医生提供的护理和所接受的治疗满意度较高。患者与皮肤科医生在对所分析变量的评估上达成了良好共识。
