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[躯体护理与自闭症:消除减少不平等现象的障碍]

[Somatic care and autism: removal of barriers to reducing inequalities].

作者信息

Acef Saïd, Aubrun Pascal

机构信息

Réseau de sané AURA 77, 8 Mail Barthelermy Thimonnier, 77185 Lognes.

出版信息

Sante Publique. 2010 Sep-Oct;22(5):529-39.

Abstract

Autism is a complex chronic disease that frequently results in a serious situation of inequalities in access to somatic care. The links and interactions between the different levels of vulnerability (somatic, psychological and social) associated with autism requires the deployment of joint and concerted action bearing equally on the improvement of the quality of access to care and on the coordination of the patient's trajectory in the health system. Following the public hearing held in 2008 by the High Authority on Health on the theme of access to care for people with disability, this article presents the existing barriers and suggests clinical and organizational facilitators. The recommendations focus on improving the knowledge-base and scientific research on the subject, the evaluation and development of parental and professional skills and know-how, and the conditions necessary for reducing inequalities in access to healthcare.

摘要

自闭症是一种复杂的慢性疾病,常常导致在获得躯体护理方面出现严重的不平等状况。与自闭症相关的不同层面的脆弱性(躯体、心理和社会)之间的联系与相互作用,需要采取联合且协调一致的行动,这同样关乎改善护理服务的获取质量以及患者在卫生系统中的就医轨迹协调。继2008年卫生高级管理局就残疾人护理服务获取主题举行公开听证会之后,本文呈现了现存的障碍并提出了临床和组织层面的促进因素。这些建议聚焦于提升该主题的知识基础和科学研究、评估并发展家长及专业人员的技能与专门知识,以及减少医疗保健获取不平等所需的条件。

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