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在线类风湿关节炎自我管理:以患者为中心的模型应用。

Online self-management in rheumatoid arthritis: a patient-centered model application.

机构信息

Harry S. Truman Memorial Veterans Hospital , Columbia, Missouri, USA.

出版信息

Telemed J E Health. 2011 Mar;17(2):104-10. doi: 10.1089/tmj.2010.0116. Epub 2011 Mar 1.

DOI:10.1089/tmj.2010.0116
PMID:21361817
Abstract

OBJECTIVE

The aim of this study was to describe the online transformation of an empirically validated, clinic-based, self-management (SM) program for rheumatoid arthritis.

MATERIALS AND METHODS

A cognitive-behavioral framework served as the theoretical basis for the intervention. As with the clinic-based approach, the psychoeducational program included educational modules, weekly homework assignments, and self-evaluation. The dynamic online environment included secure communication tools to support a virtual community for the participants to garner peer support. In addition to peer support, weekly follow-up support was provided by a trained clinician via telephone. We describe the process and structure of the online self-management (OSM) intervention. Administrative issues including clinical monitoring and management, data collection, and security safeguards are considered. Utilization and management data are provided and explored for 33 initial subjects.

RESULTS

Individuals who volunteer to participate in an online modality are eager to receive this home-based programming. They readily engaged with all aspects of the OSM program and experienced few difficulties navigating the environment.

CONCLUSION

An OSM site provides a convenient, effective, and securely maintained health service, once restricted to clinic settings. The OSM application can be used to extend the benefits of SM programs to broad target audiences and serves as a model for the emerging generation of Internet-based clinical management/delivery systems.

摘要

目的

本研究旨在描述一种基于经验验证的、基于诊所的、针对类风湿关节炎的自我管理(SM)项目的在线转化。

材料和方法

认知行为框架为干预提供了理论基础。与基于诊所的方法一样,心理教育计划包括教育模块、每周家庭作业和自我评估。动态在线环境包括安全的通信工具,以支持参与者获得同伴支持的虚拟社区。除了同伴支持外,每周还通过电话由经过培训的临床医生提供后续支持。我们描述了在线自我管理(OSM)干预的过程和结构。考虑了行政问题,包括临床监测和管理、数据收集和安全保障。提供并探讨了 33 名初始受试者的利用和管理数据。

结果

自愿参加在线模式的个人渴望接受这种家庭编程。他们欣然参与了 OSM 计划的各个方面,在导航环境方面几乎没有遇到困难。

结论

一旦限制在诊所环境中,OSM 网站就提供了一种方便、有效和安全维护的健康服务。OSM 应用程序可用于将 SM 计划的益处扩展到更广泛的目标受众,并为新兴的基于互联网的临床管理/交付系统树立了典范。

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