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开发一款针对伊朗乳腺癌相关淋巴水肿患者的移动自我护理应用程序。

Development of a Mobile-Based Self-care Application for Patients with Breast Cancer-Related Lymphedema in Iran.

机构信息

Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran.

Department of General Surgery, School of Medical Sciences, Iran University of Medical Sciences, Tehran, Iran.

出版信息

Appl Clin Inform. 2022 Oct;13(5):935-948. doi: 10.1055/s-0042-1757295. Epub 2022 Oct 5.

DOI:10.1055/s-0042-1757295
PMID:36198310
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9534597/
Abstract

BACKGROUND

Due to the chronic, progressive, and debilitating nature of breast cancer-related lymphedema (BCRL), it is necessary to observe and maintain self-care management accordingly. This study was conducted to develop a mobile application based on the Android operating system for self-care management of Iranian patients with BCRL.

METHODS

An applied developmental study was conducted in 2020. The users' information needs assessment as well as design, development, implementation, and evaluation of the mobile app for self-care management of patients with BCRL was done by searching the literature, reviewing the existing mobile applications, and surveying the users' needs. The mobile app was designed using the Android Studio environment and Java programming language in the Android operating system. The usability of the app was evaluated by 30 patients with BCRL using the questionnaire for user interface satisfaction-seventh version (QUIS 7).

RESULTS

The mobile app for BCRL included demographic information, clinical information, lifestyle and system functions (drug use, nutrition, exercise, smoking cessation, communication, and test time reminder). User usability evaluation of the app content and functions confirmed that it was appropriate and satisfactory for the self-management of women with BCRL.

CONCLUSION

The mobile app was appropriate in terms of the content, function, and quality for improving the patients' lifestyle and education and self-management of BCRL symptoms according to its usability evaluation from the end-users' (patients) perspective. It is suggested that studies should be performed to confirm the effectiveness and identify the clinical significance of the app.

摘要

背景

由于乳腺癌相关淋巴水肿(BCRL)的慢性、进行性和衰弱性,有必要进行观察和维持相应的自我护理管理。本研究旨在开发一款基于 Android 操作系统的移动应用程序,用于伊朗 BCRL 患者的自我护理管理。

方法

2020 年进行了一项应用开发研究。通过搜索文献、回顾现有移动应用程序以及调查用户需求,对患者自我护理管理的移动应用程序的用户信息需求评估以及设计、开发、实施和评估进行了研究。该移动应用程序是在 Android 操作系统的 Android Studio 环境中使用 Java 编程语言设计的。使用用户界面满意度第七版问卷(QUIS 7)对 30 名 BCRL 患者对应用程序的可用性进行了评估。

结果

BCRL 的移动应用程序包括人口统计学信息、临床信息、生活方式和系统功能(药物使用、营养、运动、戒烟、沟通和测试时间提醒)。对应用程序内容和功能的用户可用性评估证实,它适合并满足 BCRL 女性的自我管理需求。

结论

从最终用户(患者)的角度来看,该移动应用程序在内容、功能和质量方面都适合改善患者的生活方式和 BCRL 症状的教育和自我管理,并且根据其可用性评估是令人满意的。建议进行研究以确认该应用程序的有效性并确定其临床意义。