Riks-Stroke, Medicine, Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.
Int J Stroke. 2011 Apr;6(2):99-108. doi: 10.1111/j.1747-4949.2010.00557.x. Epub 2010 Dec 23.
Riks-Stroke, the Swedish Stroke Register, is the world's longest-running national stroke quality register (established in 1994) and includes all 76 hospitals in Sweden admitting acute stroke patients. The development and maintenance of this sustainable national register is described.
Riks-Stroke includes information on the quality of care during the acute phase, rehabilitation and secondary prevention of stroke, as well as data on community support. Riks-Stroke is unique among stroke quality registers in that patients are followed during the first year after stroke. The data collected describe processes, and medical and patient-reported outcome measurements. The register embraces most of the dimensions of health-care quality (evidence-based, safe, provided in time, distributed fairly and patient oriented).
Annually, approximately 25,000 patients are included. In 2009, approximately 320,000 patients had been accumulated (mean age 76-years). The register is estimated to cover 82% of all stroke patients treated in Swedish hospitals. Among critical issues when building a national stroke quality register, the delicate balance between simplicity and comprehensiveness is emphasised. Future developments include direct transfer of data from digital medical records to Riks-Stroke and comprehensive strategies to use the information collected to rapidly implement new evidence-based techniques and to eliminate outdated methods in stroke care.
It is possible to establish a sustainable quality register for stroke at the national level covering all hospitals admitting acute stroke patients. Riks-Stroke is fulfilling its main goals to support continuous quality improvement of Swedish stroke services and serve as an instrument for following up national stroke guidelines.
Riks-Stroke 是瑞典卒中登记处，是世界上运行时间最长的国家卒中质量登记处（成立于 1994 年），包含瑞典所有收治急性卒中患者的 76 家医院。本文描述了该可持续国家登记处的建立和维护过程。
Riks-Stroke 包括急性阶段的护理质量、卒中康复和二级预防以及社区支持方面的数据。Riks-Stroke 是卒中质量登记处中的独特之处，因为它在卒中后第一年对患者进行随访。收集的数据描述了过程以及医疗和患者报告的结果测量。该登记处涵盖了医疗质量的大部分维度（基于证据、安全、及时提供、公平分配和以患者为中心）。
每年约有 25000 名患者被纳入。2009 年，已累计约 32 万名患者（平均年龄 76 岁）。该登记处估计涵盖了瑞典医院治疗的所有卒中患者的 82%。在建立国家卒中质量登记处时，关键问题是在简单性和全面性之间取得微妙平衡。未来的发展包括将数据从数字病历直接传输到 Riks-Stroke，并制定全面的策略，利用收集到的信息迅速实施新的基于证据的技术，并消除卒中护理中过时的方法。
在国家层面建立涵盖所有收治急性卒中患者的医院的可持续卒中质量登记处是可行的。Riks-Stroke 正在实现其主要目标，即支持瑞典卒中服务的持续质量改进，并作为跟踪国家卒中指南的工具。
