Department of Health Outcomes and Policy, University of Florida, Gainesville, Florida 32610, USA.
J Palliat Med. 2011 Apr;14(4):437-43. doi: 10.1089/jpm.2010.0387. Epub 2011 Mar 8.
To determine the spirituality of parents whose children have life-limiting illnesses and to determine the factors associated with parents' spirituality.
Telephone survey of 129 parents whose children were enrolled in a pediatric palliative care program in Florida. The Functional Assessment of Chronic Illness Therapy-Spiritual Well-being (FACIT-Sp) scale was used to measure parents' spirituality. The Health Utilities Index (HUI) was used to measure health status.
Parents' average score on the FACIT-Sp meaning/peace subscale was 24.1 out of 32, and 12.5 out of 16 for the faith subscale. Parents' average total FACIT-Sp score was 36.6 of 48. Multivariate analyses show that parental black non-Hispanic race, "other" race, being married, as well as children's higher vision and hearing health status were associated with higher spirituality, as measured by the total FACIT-Sp. Two parent household and children's higher speech health status were associated with lower FACIT-Sp scores.
Our results suggest that non-white parents have greater faith-based and overall spirituality than white parents. Spiritual assessments should be conducted for all parents as differing supportive services may be needed. The palliative care team should ensure that parents' spirituality is being incorporated, as appropriate, into their children's routine care.
确定患有绝症的儿童的父母的精神信仰，并确定与父母精神信仰相关的因素。
对佛罗里达州参与儿科姑息治疗项目的 129 名父母进行电话调查。采用慢性疾病治疗-精神健康量表（FACIT-Sp）衡量父母的精神信仰，采用健康效用指数（HUI）衡量健康状况。
父母在 FACIT-Sp 量表的意义/平和分量表上的平均得分为 32 分中的 24.1 分，在信仰分量表上的平均得分为 16 分中的 12.5 分。父母的平均总 FACIT-Sp 得分为 48 分中的 36.6 分。多变量分析显示，父母的非裔黑人、“其他”种族、已婚、孩子更好的视力和听力健康状况与更高的精神信仰相关，这是通过总 FACIT-Sp 来衡量的。双亲家庭和孩子更好的言语健康状况与较低的 FACIT-Sp 评分相关。
我们的研究结果表明，非裔父母比白人父母具有更强的基于信仰的和整体精神信仰。应针对所有父母进行精神评估，因为可能需要不同的支持服务。姑息治疗团队应确保适当将父母的精神信仰纳入其子女的常规护理中。
