Department of Occupational Therapy, School of Primary Health Care, Faculty of Medicine, Nursing and Health Sciences, Monash University-Peninsula Campus, Frankston, Victoria, Australia.
J Intellect Disabil Res. 2011 May;55(5):511-20. doi: 10.1111/j.1365-2788.2011.01407.x. Epub 2011 Mar 8.
Families of children with disabilities experience extra financial strains, and mothers are frequently unable to participate in paid work because of caregiving obligations.
A mailed survey and follow-up phone calls were used to gather data about mother's health, workforce participation and barriers to inclusion in the workplace (n = 152). Verbatim reports of issues that hindered workforce participation were analysed qualitatively to derive themes. Maternal health-related quality of life (HRQoL) was measured using the Short Form Health Survey Version 2 (SF-36v2). Norm-based conversions were used to compare HRQoL between working and non-working mothers and to compare to population norms.
Eighty-two per cent of mothers in the sample wanted and needed to work for pay but indicated over 300 issues that prevent their work participation. Data analysis revealed 26 common issues which prevent work participation. These issues fit into three main categories: mother-related reasons (28%), child-related reasons (29%) and service limitations (43%). Mothers who worked (n = 83) reported significantly better HRQoL than mothers who did not work (n = 69) on five of the eight SF-36v2 dimensions and overall mental health.
Compared to other working Australians, mothers in this study had higher education yet reported poorer health, lower family income and lower workforce participation. Respondents reported that service system limitations were the main barriers to participation in the paid workforce. Investigation of service changes such as increased respite care, availability of outside hours school care, improved professional competency and family-centred services is recommended in order to improve maternal participation in paid work.
有残疾儿童的家庭会面临额外的经济压力,母亲经常因为照顾孩子的责任而无法参加有薪工作。
通过邮寄调查和后续电话收集了 152 名母亲的健康状况、劳动力参与情况和工作场所融入障碍的数据。对阻碍劳动力参与的问题的逐字报告进行了定性分析,以得出主题。使用健康调查简表第二版(SF-36v2)衡量与母亲健康相关的生活质量(HRQoL)。采用基于标准的转换方法,将工作和非工作母亲的 HRQoL 进行比较,并与人口标准进行比较。
在样本中,82%的母亲希望并需要有薪工作,但表示有 300 多个问题阻碍了她们的工作参与。数据分析显示,有 26 个常见问题会阻碍工作参与。这些问题分为三大类:母亲相关原因(28%)、儿童相关原因(29%)和服务限制(43%)。与未工作的母亲(n=69)相比,工作的母亲(n=83)在 SF-36v2 的八个维度中的五个维度和整体心理健康方面报告的 HRQoL 明显更好。
与其他澳大利亚工作者相比,这项研究中的母亲受教育程度更高,但报告的健康状况更差、家庭收入更低、劳动力参与率更低。受访者表示,服务系统限制是参与有偿劳动力的主要障碍。建议对服务进行改革,如增加临时护理、提供课外学校护理、提高专业能力和以家庭为中心的服务,以提高母亲对有偿工作的参与度。