Stanley Patricia, Hurst Marsha
Program in Narrative Medicine, Columbia University, New York, New York, USA.
J Soc Work End Life Palliat Care. 2011;7(1):39-55. doi: 10.1080/15524256.2011.548046.
We make meaning of illness, suffering, and death through narrative, by telling a story. In this article, the authors explore narrative and palliative care: how, at the end of life, narratives of patients, caregivers, and clinicians serve to connect to those still living, and how through each telling and listening, we honor and validate the experience of suffering. A discussion of narrative competence and the skills of attention, representation, and affiliation is followed by an outline of the format for a narrative medicine workshop and a detailed analysis of an experiential exercise in close reading and reflective writing.
我们通过讲述故事，即借助叙事来理解疾病、痛苦和死亡。在本文中，作者探讨了叙事与姑息治疗：在生命末期，患者、护理人员和临床医生的叙事如何与在世之人建立联系，以及通过每一次的讲述与倾听，我们如何尊重并认可痛苦的经历。在讨论了叙事能力以及关注、呈现和归属的技巧之后，本文概述了叙事医学工作坊的形式，并对一项关于深度阅读和反思性写作的体验练习进行了详细分析。
