Jeglinsky I, Autti-Rämö I, Brogren Carlberg E
Arcada, University of Applied Sciences, Helsinki, Finland.
Child Care Health Dev. 2012 Jan;38(1):70-8. doi: 10.1111/j.1365-2214.2011.01211.x. Epub 2011 Mar 11.
Children with cerebral palsy have difficulties in several areas of functioning, and they need long-lasting rehabilitation with a clear focus on the individual's needs. Finnish guidelines emphasize family-centred service. The values of family-centred service are widely known, but how the principles of family-centred service are adopted in clinical practice is not well documented. The objective of this study was to analyse the family-centred behaviour of professionals working with children and adolescents with cerebral palsy.
A translated version of the Measure of Processes of Care for Service Providers (MPOC-SP) questionnaire was used to evaluate the family-centred service. The questionnaire was sent to all the professionals in the multidisciplinary rehabilitation teams at all the hospitals and governmental special schools treating children and adolescents with cerebral palsy in Finland (n= 327). Furthermore, 438 physiotherapy service providers working in the children's home region were invited to participate.
A total of 201 multidisciplinary team members and 311 physiotherapy service providers completed the questionnaire. Both the team members and the service providers generally rated their family-centred behaviour positively. There was statistically significant difference in how the team members in the multidisciplinary teams self-assessed their family-centred service. Physiotherapists working in multidisciplinary teams rated their family-centred service higher than physiotherapy service providers. The professional's apprehension of family-centred service increased with work experience.
Professional background and professional context seem to affect the apprehension of family-centred service. Also work experience and being part of a multidisciplinary team have an influence on how the professionals embrace the family-centred service delivered. The MPOC-SP can be used to identify areas for improvement.
脑瘫儿童在多个功能领域存在困难，他们需要长期康复治疗，且要明确关注个体需求。芬兰的指导方针强调以家庭为中心的服务。以家庭为中心的服务的价值广为人知，但在临床实践中如何采用以家庭为中心服务的原则却鲜有文献记载。本研究的目的是分析为脑瘫儿童和青少年提供服务的专业人员以家庭为中心的行为。
使用《服务提供者护理过程测量问卷》（MPOC-SP）的翻译版本来评估以家庭为中心的服务。该问卷被发送给芬兰所有治疗脑瘫儿童和青少年的医院及政府特殊学校的多学科康复团队中的所有专业人员（n = 327）。此外，还邀请了在儿童所在地区工作的438名物理治疗服务提供者参与。
共有201名多学科团队成员和311名物理治疗服务提供者完成了问卷。团队成员和服务提供者总体上对他们以家庭为中心的行为给予了积极评价。多学科团队中的团队成员对其以家庭为中心服务的自我评估存在统计学上的显著差异。在多学科团队中工作的物理治疗师对其以家庭为中心服务的评价高于物理治疗服务提供者。专业人员对以家庭为中心服务的理解随着工作经验的增加而提高。
专业背景和专业环境似乎会影响对以家庭为中心服务的理解。工作经验以及成为多学科团队的一员也会影响专业人员接受所提供的以家庭为中心服务的方式。MPOC-SP可用于确定改进领域。
