Oregon State University, Sociology, Fairbanks Hall, Corvallis, OR 97331, United States.
Soc Sci Med. 2011 Apr;72(8):1351-8. doi: 10.1016/j.socscimed.2011.02.024. Epub 2011 Mar 8.
This paper examines the reactions of women with breast cancer to the 2009 U.S. Preventive Services Task Force recommendations for mammography screening. Specifically, it analyzes electronic postings about the Task Force's recommendations from five breast cancer discussion boards between November 17, 2009 and December 17, 2009. Women's opposition to the recommendations is best understood as a clash between scientific and lay expertise concerning the priorities of medicine and notions of evidentiary significance. We highlight the connective logic - or connectivity - that underlies lay expertise in the electronic era. Connectivity is a unique way of knowing that emerges from an experiential connection to illness and a virtual connection to others with the same illness. Connectivity is based on forms of evidence that enhance the moral authority of lay claims for medical succor. Connectivity is a potent element in contemporary lay challenges to scientific expertise and will become increasingly influential as online illness affiliation becomes ever more commonplace.
本文考察了女性乳腺癌患者对 2009 年美国预防服务工作组推荐的乳房 X 光筛查的反应。具体来说，它分析了 2009 年 11 月 17 日至 12 月 17 日期间五个乳腺癌讨论板上关于工作组建议的电子帖子。女性对这些建议的反对，最好被理解为医学优先事项和证据意义观念方面的科学和非专业知识之间的冲突。我们强调了在电子时代非专业知识背后的连接逻辑或连通性。连通性是一种独特的认知方式，源于与疾病的体验联系以及与患有相同疾病的其他人的虚拟联系。连通性基于增强非专业人士对医疗救助主张的道德权威的证据形式。连通性是当代非专业人士对科学专业知识的挑战的一个有力因素，随着在线疾病关联变得越来越普遍，它将变得越来越有影响力。
