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巴勒斯坦权力机构的姑息治疗情况。

Palliative care situation in Palestinian Authority.

作者信息

Shawawra Mousa, Khleif Amal Dweib

机构信息

Al-Sadeel Society for Palliative Care for Cancer Patients, 733 Geminer St., Karkafa, Bethlehem, Palestinian National Authority, East Jesusalem.

出版信息

J Pediatr Hematol Oncol. 2011 Apr;33 Suppl 1:S64-7. doi: 10.1097/MPH.0b013e31821223a3.

DOI:10.1097/MPH.0b013e31821223a3
PMID:21448041
Abstract

Palliative care is a very new concept in Palestine. In fact, it is still not applicable or provided within the Palestinian health care system. However, Al-Sadeel Society had organized a one day workshop in Bethlehem on November 2008 for the health professionals from the governmental and non-governmental sectors to initiate and introduce the idea of palliative care for the first time in Palestine. The general population of Palestine is approximately 2.4 millions (2007), with a life expectancy of 74.3 years of age, the death rate is 3.7 per 1000 population, having 8,910 deaths a year. Deaths due to cancer were 2,305 in five years (1999-2003), where 5,542 new cases were newly diagnosed in the same period. Health services available for cancer patients are hospital units either in patient or day care units. According to the ministry of health (MOH) statistics there are 75 beds in oncology departments in MOH hospitals; represent 2.7% of the total number of beds available, and 60 beds in daily care departments with an occupancy rate at 231.8%. There is no hospice or bereavement follow up care available for patients or their families. Despite the fact that the Palestinian culture is one of the cultures that respect and care for the elderly, but at the end of life, when the load of symptoms is high, most of the patient are care for at hospitals, and usually dye there, because the families are not able to care for their patients, and as there is no system for home care available for the Palestinian patients, and if it is available it is available in limited places and on private bases that are expensive and not affordable to the majority of patients, gross domestic product (GPD) per capita= 1,100 as 2007 estimates). We conducted a needs assessment survey within the only four facilities that provide care for the oncology patients in the West Bank and were filled by the direct health care providers. The results were expressing the fact that there is no palliative care service available for cancer patients or their families, absence of organizations strategic planning for palliative care, No presence of educational resources for palliative care, No presence of communication or consultation to the clergy man, Absence of bereavement support group, no active follow up for the patient and the family, no standards for palliative care service or training programs in palliative care, no home care service for palliative care, absence of community awareness for palliative care And Absence of national standard for palliative care. The recommendations that we can conclude, depending on the needs assessment that we did, and according to the recommendations that come up through the workshop that was organized by Al-Sadeel Society and was attended by key personnel from the Palestinian MOH who summarized the conclusion, are as follows: 1. The need for better quality care for the cancer patient.2. The need for training of health professionals in palliative care.3. The importance of networking and cooperation between the national NGO's and the MOH.4. The need for public awareness regarding the early detection for cancer especially breast cancer.5. The need for national policy and standards for palliative care and opioids legislations.6. The importance of base line data and research. 7. The need for interdisciplinary team work in the issue of cancer. 8. To involve palliative care education within the curriculum of schools of health professions.

摘要

姑息治疗在巴勒斯坦是一个非常新的概念。事实上,它在巴勒斯坦医疗体系中仍未得到应用或提供。然而,2008年11月,萨迪尔协会在伯利恒为政府和非政府部门的卫生专业人员组织了一次为期一天的研讨会,首次在巴勒斯坦发起并介绍了姑息治疗的理念。巴勒斯坦总人口约为240万(2007年),预期寿命为74.3岁,死亡率为每1000人中有3.7人,每年有8910人死亡。五年(1999 - 2003年)间,癌症死亡人数为2305人,同期新确诊5542例新病例。为癌症患者提供的医疗服务是医院的住院部或日间护理单元。根据卫生部的统计,卫生部医院的肿瘤科有75张床位,占可用床位总数的2.7%,日间护理部有60张床位,床位占用率为231.8%。没有为患者或其家属提供临终关怀或丧亲后续护理服务。尽管巴勒斯坦文化是尊重和照顾老年人的文化之一,但在生命末期,当症状负担很重时,大多数患者在医院接受护理,通常在医院死亡,因为家庭无法照顾他们的患者,而且由于没有为巴勒斯坦患者提供家庭护理系统,即使有,也只在有限的地方且以私人形式提供,费用昂贵,大多数患者负担不起,2007年人均国内生产总值估计为1100美元)。我们在约旦河西岸仅有的四家为肿瘤患者提供护理的机构内进行了需求评估调查,由直接的医疗服务提供者填写。结果表明,癌症患者及其家属没有姑息治疗服务,缺乏姑息治疗的组织战略规划,没有姑息治疗的教育资源,没有与神职人员的沟通或咨询,没有丧亲支持小组,没有对患者及其家庭的积极随访,没有姑息治疗服务标准或姑息治疗培训项目,没有姑息治疗家庭护理服务,缺乏社区对姑息治疗的认识以及缺乏姑息治疗国家标准。根据我们所做的需求评估以及萨迪尔协会组织的、有巴勒斯坦卫生部关键人员参加并总结结论所提出的建议,我们可以得出以下结论:1. 需要为癌症患者提供更高质量的护理。2. 需要对卫生专业人员进行姑息治疗培训。3. 国家非政府组织与卫生部之间建立网络和合作的重要性。4. 需要提高公众对癌症尤其是乳腺癌早期检测的认识。5. 需要制定姑息治疗国家政策和标准以及阿片类药物立法。6. 基线数据和研究的重要性。7. 在癌症问题上需要跨学科团队合作。8. 将姑息治疗教育纳入卫生专业学校的课程。

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