Department of General Practice, University Medical Center Groningen, and Department of Neurology, Martini Hospital Groningen, Antonius Deusinglaan 1, 9713 AV, Groningen, the Netherlands.
BMC Neurol. 2011 Mar 31;11:42. doi: 10.1186/1471-2377-11-42.
Annually, 41,000 people in the Netherlands have strokes. This has multiple physical and psychosocial consequences. Most patients return home after discharge from hospital. Quality aftercare by general practitioners is important to support patients at home. The purpose of this study is to examine the wellbeing of patients who returned home immediately after discharge from hospital, one year post stroke, in comparison with the general Dutch population of the same age and to determine factors that could influence wellbeing.
All the stroke patients from the Department of Neurology, Martini Hospital Groningen in the period November 2006 to October 2007 were included. People aged under 65 years or with haemorrhaging were excluded. All the patients (N=57) were interviewed at home using the following questionnaires: Barthel Index, SF-36, HADS, CSI and a questionnaire about their way of life.
31% of the patients in this study experienced a decrease in functional status after one year. Nevertheless, there was no significant difference between the median Barthel Index value at discharge from hospital and one year post stroke. ADL independence correlated with a better quality of life. The health-related quality of life was high. Stroke patients have almost the same quality of life as the 'average' Dutch elderly population. Where patients can no longer fully participate in society, their perceived quality of life is also lower. In this study there is an indication of a high prevalence of depression and anxiety disorders in stroke patients. This negatively affects the quality of life a year after stroke. Although caregiver strain was low for the partners of stroke patients, a reduced quality of life is correlated to greater burden.
This study provides valuable insight into the wellbeing of patients living at home one year post stroke. Physical functioning and quality of life are comparable to the general population of the same age, but improvements in mental functioning can be envisaged. In addition, more attention should be paid to maintaining the patients' activities. The wellbeing of these stroke patients could be increased further if greater attention is paid to these aspects of life. This seems to be applicable to general practice.
荷兰每年有 41000 人中风。这会带来多种身体和心理社会后果。大多数患者在出院后会返回家中。全科医生提供的优质康复护理对支持患者在家中康复非常重要。本研究旨在比较中风后立即出院回家的患者与同年龄的普通荷兰人群在一年后的幸福感,并确定可能影响幸福感的因素。
纳入 2006 年 11 月至 2007 年 10 月期间来自格罗宁根马蒂尼医院神经内科的所有中风患者。排除年龄在 65 岁以下或有出血的患者。所有患者(N=57)均在家中使用以下问卷进行访谈:巴氏指数、SF-36、HADS、CSI 和生活方式问卷。
本研究中 31%的患者在一年后功能状态下降。然而,出院时和一年后巴氏指数中位数之间没有显著差异。日常生活活动独立与更好的生活质量相关。健康相关生活质量较高。中风患者的生活质量与“普通”荷兰老年人群相当。当患者无法充分参与社会活动时,他们的感知生活质量也较低。在这项研究中,中风患者存在抑郁和焦虑障碍的高发率,这会对中风一年后的生活质量产生负面影响。尽管中风患者的伴侣的照顾者负担较低,但生活质量下降与负担增加相关。
本研究提供了有关中风后在家中生活一年的患者幸福感的宝贵见解。身体功能和生活质量与同年龄的普通人群相当,但可以预期心理功能会有所改善。此外,应该更加关注维持患者的活动能力。如果更加关注这些生活方面,这些中风患者的幸福感可以进一步提高。这似乎适用于一般实践。