Research Department of Clinical, Educational and Health Psychology, University College London, Gower Street, London, UK.
J Autism Dev Disord. 2012 Feb;42(2):230-43. doi: 10.1007/s10803-011-1238-5.
We used framework analysis to investigate the utility of pervasive developmental disorder diagnoses, interviewing young people (aged 9-16 years) with high-functioning autistic disorder (AD) and Asperger's disorder (AsD), and their parents. Twenty two participants from ten families described both gains and costs resulting from diagnosis. Perceived advantages of AD and AsD diagnosis were increased understanding and practical support, and parental empowerment. Disadvantages included the effects of stigma and concerns about validity. Participants tended to consider AsD and AD as interchangeable terms. Findings suggest that the utility of AD and AsD depends upon both their validity and how these diagnoses are received in their cultural, economic and legislative context. Improvement of post-diagnostic services will improve the utility of AD and AsD.
我们采用框架分析来研究广泛性发育障碍诊断的效用，对高功能自闭症障碍（AD）和阿斯伯格综合征（AsD）的年轻人（9-16 岁）及其父母进行了访谈。来自十个家庭的 22 名参与者描述了诊断带来的收益和成本。AD 和 AsD 诊断的好处包括增加理解和实际支持，以及增强父母的能力。缺点包括污名化的影响和对有效性的担忧。参与者倾向于认为 AsD 和 AD 是可互换的术语。研究结果表明，AD 和 AsD 的效用取决于它们的有效性以及这些诊断在其文化、经济和法律背景下的接受程度。改善诊断后的服务将提高 AD 和 AsD 的效用。
