Akershus Universitetssykehus, Seksjon Klosteret, Alexander Kiellands Gate 11, 2000 Lillestrøm, Lillestrøm, Norway.
Disabil Rehabil. 2011;33(23-24):2255-63. doi: 10.3109/09638288.2011.568663. Epub 2011 Apr 7.
The aim of this pilot study was to explore illness beliefs and coping strategies among adolescent patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), applying a qualitative methodology. Recent studies have explored the illness beliefs and coping strategies of adult patients with CFS/ME as possible contributing factors to the disease aetiology. These studies have mainly used quantitative methods, finding that patients often explain their illness as being due to physical causes, deny psychological causes and make use of passive and avoidant coping strategies.
Semi-structured, in-depth interviews were conducted with nine adolescent patients with CFS/ME, thematic analysis was adapted to the material and the results were interpreted in light of theories of attribution and coping.
The qualitative method allowed for more complex and nuanced accounts of illness experience. The findings showed that the adolescents differ from what has previously been reported, applying more varied and flexible illness attributions and coping mechanisms than expected.
The heterogeneity suggested in the results has implications. We suggest three perspectives should be taken into account, both for further research and in clinical practice: (1) individual differences; (2) a developmental perspective and (3) interactive relational focus.
本研究旨在采用定性方法探索青少年慢性疲劳综合征/肌痛性脑脊髓炎（CFS/ME）患者的疾病信念和应对策略。最近的研究已经探讨了成人 CFS/ME 患者的疾病信念和应对策略，这些可能是导致疾病病因的因素。这些研究主要使用定量方法，发现患者经常将自己的疾病解释为身体原因引起的，否认心理原因，并采用被动和回避的应对策略。
对 9 名患有 CFS/ME 的青少年患者进行了半结构化深入访谈，采用主题分析法对资料进行分析，并根据归因和应对理论对结果进行解释。
定性方法可以更复杂和细致地描述疾病体验。研究结果表明，青少年与以前的报告不同，他们的疾病归因和应对机制比预期的更加多样化和灵活。
结果中表现出的异质性具有一定的意义。我们建议，在进一步的研究和临床实践中，应考虑三个方面：（1）个体差异；（2）发展视角；（3）互动关系焦点。
