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对青少年慢性疲劳综合征经历的质性探索。

A qualitative exploration of adolescents' experiences of chronic fatigue syndrome.

作者信息

Jelbert Rebecca, Stedmon Jacqui, Stephens Alison

机构信息

University of Plymouth, UK.

出版信息

Clin Child Psychol Psychiatry. 2010 Apr;15(2):267-83. doi: 10.1177/1359104509340940. Epub 2010 Feb 23.

Abstract

The aim of this study is to provide a qualitative perspective of adolescents' experiences of Chronic Fatigue Syndrome (CFS). Five adolescents who were considered to have recovered from CFS participated in semistructured interviews regarding their experience. The transcripts were then analysed using interpretative phenomenological analysis. Five main themes were identified to represent common shared experiences across participants.These related to seeking understanding around the illness, experiences of loss, perceived influences on the illness, difficult emotional experiences, and adolescents' status post recovery. While significant efforts are being made to increase knowledge and understanding of CFS within the child and adolescent population there is still much to be learned, as is evident from this direct account of adolescents' experiences. We identify implications for clinical practice and suggestions for future research in light of listening to the adolescents' stories.

摘要

本研究的目的是提供青少年慢性疲劳综合征(CFS)经历的定性观点。五名被认为已从慢性疲劳综合征康复的青少年参与了关于其经历的半结构化访谈。然后使用解释现象学分析对访谈记录进行分析。确定了五个主要主题,以代表参与者之间的共同经历。这些主题涉及寻求对疾病的理解、失去的经历、对疾病的感知影响、艰难的情感经历以及青少年康复后的状况。虽然正在做出重大努力来增加儿童和青少年群体对慢性疲劳综合征的认识和理解,但仍有许多需要学习的地方,从青少年经历的直接描述中可以明显看出这一点。根据青少年的故事,我们确定了对临床实践的启示以及对未来研究的建议。

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