Department of Infectious Diseases, Aarhus University Hospital, Aarhus, Denmark.
Qual Health Res. 2011 Sep;21(9):1249-59. doi: 10.1177/1049732311405803. Epub 2011 Apr 11.
The purpose of this grounded theory study was to investigate how Danish HIV-positive persons live with their disease, focusing on HIV-related stressors. Using the Glaserian method, we analyzed textual data from in-depth interviews with 16 HIV-positive persons. Decisions about disclosure appeared to be a major concern and a determining factor for HIV-related stress. Consequently, we developed a substantive theory about disclosure decisions in which three different strategies could be identified: (a) disclosing to everyone (being open); (b) restricting disclosure (being partly open); and (c) disclosing to no one (being closed). Disclosure was a continuum; none of the three strategies automatically relieved HIV-related stress. The theory describes the main determinants and consequences of each strategy. Our study demonstrates the importance of recurrent individual considerations about disclosure choices and plans, and offers a theoretical basis for interventions designed to assist persons living with HIV to make the best possible individual decisions regarding disclosure, and thereby reduce HIV-related stress.
本扎根理论研究旨在探讨丹麦 HIV 阳性者如何应对疾病，重点关注与 HIV 相关的压力源。我们采用格拉泽方法，对 16 名 HIV 阳性者的深入访谈文本数据进行了分析。披露决定似乎是一个主要关注点和 HIV 相关压力的决定因素。因此，我们制定了一项关于披露决策的实质性理论，其中可以确定三种不同的策略：（a）向所有人披露（开放）；（b）限制披露（部分开放）；和（c）不向任何人披露（封闭）。披露是一个连续体；这三种策略都不能自动减轻与 HIV 相关的压力。该理论描述了每种策略的主要决定因素和后果。我们的研究表明，反复考虑披露选择和计划的重要性，并为旨在帮助 HIV 感染者做出关于披露的最佳个人决策的干预措施提供了理论基础，从而减轻与 HIV 相关的压力。
