Outcomes Research Branch, National Cancer Institute/NIH, 6130 Executive Boulevard, Bethesda, MD 20892, USA.
Am J Prev Med. 2011 May;40(5 Suppl 2):S198-207. doi: 10.1016/j.amepre.2011.01.014.
The cancer care system is increasingly complex, marked by multiple hand-offs between primary care and specialty providers, inadequate communication among providers, and lack of clarity about a "medical home" (the ideal accountable care provider) for cancer patients. Patients and families often cite such difficulties as information deficits, uncoordinated care, and insufficient psychosocial support. This article presents a review of the challenges of delivering well coordinated, patient-centered cancer care in a complex modern healthcare system. An examination is made of the potential role of information technology (IT) advances to help both providers and patients. Using the published literature as background, a review is provided of selected work that is underway to improve communication, coordination, and quality of care. Also discussed are additional challenges and opportunities to advancing understanding of how patient data, provider and patient involvement, and informatics innovations can support high-quality cancer care.
癌症护理系统日益复杂，其特征是初级保健和专业提供者之间存在多次交接、提供者之间沟通不足，以及癌症患者的“医疗之家”（理想的责任医疗提供者）缺乏明确性。患者和家属经常提到信息不足、护理不协调和社会心理支持不足等困难。本文综述了在复杂的现代医疗保健系统中提供协调良好、以患者为中心的癌症护理的挑战。本文探讨了信息技术 (IT) 进步的潜在作用，以帮助提供者和患者。本文以已发表的文献为背景，回顾了正在进行的旨在改善沟通、协调和护理质量的选定工作。此外，还讨论了推进理解患者数据、提供者和患者参与以及信息学创新如何支持高质量癌症护理的其他挑战和机遇。
