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临床实践中类风湿关节炎的晨僵及其他患者报告的结局

Morning stiffness and other patient-reported outcomes of rheumatoid arthritis in clinical practice.

作者信息

Sokka T

机构信息

Department of Medicine, Jyväskylä Central Hospital, Jyväskylä, Finland.

出版信息

Scand J Rheumatol Suppl. 2011;125:23-7. doi: 10.3109/03009742.2011.566437.

DOI:10.3109/03009742.2011.566437
PMID:21529307
Abstract

Morning stiffness has been recognized in traditional approaches to assessment of disease activity in rheumatoid arthritis (RA). Although morning stiffness is not specific to RA, changes in morning stiffness for an individual patient are helpful when monitoring health status. Health professionals can ask about morning stiffness but the most accurate and consistent approach to assessment from one visit to the next appears to be a patient self-report questionnaire. However, quantitative measures of patient-reported data are not an integral part of clinical monitoring in most clinics. No single measure is adequate for all individual patients, so quantitative measurement of patient-reported data should include many elements such as pain, functional status, fatigue, sleep, morning stiffness, work capacity, and physical and emotional well-being. In daily clinical practice, patient-reported outcomes can be collected easily using a standard questionnaire that patients can complete with pencil and paper or electronically on a touch screen in the waiting room. The results are then immediately available to the rheumatologists, to facilitate doctor-patient communication to improve the quality of patient care, leading to better patient outcomes.

摘要

在类风湿关节炎(RA)疾病活动评估的传统方法中,晨僵已得到认可。虽然晨僵并非RA所特有,但个体患者晨僵情况的变化在监测健康状况时是有帮助的。医疗专业人员可以询问晨僵情况,但从一次就诊到下一次就诊,最准确且一致的评估方法似乎是患者自我报告问卷。然而,在大多数诊所中,患者报告数据的定量测量并非临床监测的一个组成部分。没有单一的测量方法适用于所有个体患者,因此患者报告数据的定量测量应包括疼痛、功能状态、疲劳、睡眠、晨僵、工作能力以及身体和情绪健康等许多要素。在日常临床实践中,可以使用标准问卷轻松收集患者报告的结果,患者可以用铅笔和纸填写问卷,或者在候诊室通过触摸屏以电子方式填写。然后,结果可立即提供给风湿病学家,以促进医患沟通,提高患者护理质量,从而带来更好的患者治疗效果。

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