Lopez Violeta, Copp Gina, Brunton Lisa, Molassiotis Alexander
Research Centre for Nursing and Midwifery Practice, Australian National University, Medical School, Canberra, Australia.
J Support Oncol. 2011 Mar-Apr;9(2):64-71. doi: 10.1016/j.suponc.2011.01.005.
The vast majority of the increasing cancer literature on physical and psychological symptom clusters is quantitative, attempting either to model clusters through statistical techniques or to test priori clusters for their strength of relationship. Narrative symptom clusters can be particularly sensitive outcomes that can generate conceptually meaningful hypotheses for symptom cluster research. We conducted a study to explore the explanation of patients about the development and coexistence of symptoms and how patients at tempted to self-manage them. We collected 2-month qualitative longitudinal data over four assessment points consisting of 39 interview data sets from 10 participants with gynecological cancer. Participants' experiences highlighted the presence of physical and psychological symptom clusters, complicating the patients 'symptom experience that often lasted 1 year. While some complementary and self-management approaches were used to manage symptoms, few options and interventions were discussed. The cancer care team maybe able to develop strategies for a more thorough patient assessment of symptoms reported as the most bother so mean and patient-centered sensitive interventions that encompass the physiological, psychological, sociocultural, and behavioral components of the symptom experience essential for effectives symptom management.
关于身体和心理症状群的癌症文献数量不断增加，其中绝大多数是定量研究，要么试图通过统计技术对症状群进行建模，要么检验先验症状群之间的关系强度。叙述性症状群可能是特别敏感的结果，能够为症状群研究生成具有概念意义的假设。我们开展了一项研究，以探究患者对症状产生和共存的解释，以及患者尝试自我管理症状的方式。我们在四个评估点收集了为期两个月的定性纵向数据，包括来自10名妇科癌症患者的39份访谈数据集。参与者的经历凸显了身体和心理症状群的存在，使患者的症状体验变得复杂，这种体验通常持续1年。虽然患者采用了一些补充和自我管理方法来应对症状，但讨论的选择和干预措施很少。癌症护理团队或许能够制定策略，以便更全面地评估患者报告的最困扰的症状，从而制定以患者为中心的敏感干预措施，这些措施应涵盖症状体验的生理、心理、社会文化和行为成分，这对有效管理症状至关重要。
