子痫前期患者的经历：澳大利亚子痫前期行动对患者及其密友的调查
Women's experiences of preeclampsia: Australian action on preeclampsia survey of women and their confidants.
作者信息
East C, Conway K, Pollock W, Frawley N, Brennecke S
机构信息
Department of Obstetrics & Gynaecology, University of Melbourne and Department of Perinatal Medicine, Royal Women's Hospital, 20 Flemington Road, Parkville, VIC 3052, Australia.
出版信息
J Pregnancy. 2011;2011:375653. doi: 10.1155/2011/375653. Epub 2011 Mar 23.
INTRODUCTION
The experience of normal pregnancy is often disrupted for women with preeclampsia (PE).
MATERIALS AND METHODS
Postal survey of the 112 members of the consumer group, Australian Action on Pre-Eclampsia (AAPEC).
RESULTS
Surveys were returned by 68 women (61% response rate) and from 64 (57%) partners, close relatives or friends. Respondents reported experiencing pre-eclampsia (n = 53), eclampsia (n = 5), and/or Hemolysis, Elevated Liver enzymes, and Low Platelets (HELLP syndrome) (n = 26). Many women had no knowledge of PE prior to diagnosis (77%) and, once diagnosed, did not appreciate how serious or life threatening it was (50%). Women wanted access to information about PE. Their experience contributed substantial anxiety towards future pregnancies. Partners/friends/relatives expressed fear for the woman and/or her baby and had no prior understanding of PE.
CONCLUSIONS
The PE experience had a substantial effect on women, their confidants, and their babies and affected their approach to future pregnancies. Access to information about PE was viewed as very important.
引言
子痫前期（PE）女性的正常妊娠体验常常被打乱。
材料与方法
对消费者组织澳大利亚子痫前期行动组织（AAPEC）的112名成员进行邮政调查。
结果
68名女性（回复率61%）以及64名（57%）伴侣、近亲或朋友回复了调查问卷。受访者报告经历了子痫前期（n = 53）、子痫（n = 5）和/或溶血、肝酶升高和血小板减少（HELLP综合征）（n = 26）。许多女性在诊断前对PE一无所知（77%），一旦确诊，也没有意识到它有多严重或危及生命（50%）。女性希望获得有关PE的信息。她们的经历给未来的怀孕带来了极大的焦虑。伴侣/朋友/亲属表达了对女性和/或其婴儿的担忧，并且之前对PE没有了解。
结论
PE经历对女性、她们的知己和婴儿产生了重大影响，并影响了她们对未来怀孕的态度。获取有关PE的信息被视为非常重要。
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