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针对患有生命有限疾病的住院老年人的姑息治疗的意义与实践。

Meaning and practice of palliative care for hospitalized older adults with life limiting illnesses.

作者信息

Powers Bethel Ann, Norton Sally A, Schmitt Madeline H, Quill Timothy E, Metzger Maureen

机构信息

School of Nursing, University of Rochester, 601 Elmwood Avenue, Box SON, Rochester, NY 14642, USA.

出版信息

J Aging Res. 2011 Apr 13;2011:406164. doi: 10.4061/2011/406164.

DOI:10.4061/2011/406164
PMID:21584232
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3092544/
Abstract

Objective. To illustrate distinctions and intersections of palliative care (PC) and end-of-life (EOL) services through examples from case-centered data of older adults cared for during a four-year ethnographic study of an acute care hospital palliative care consultation service. Methods. Qualitative narrative and thematic analysis. Results. Description of four practice paradigms (EOL transitions, prognostic uncertainty, discharge planning, and patient/family values and preferences) and identification of the underlying structure and communication patterns of PC consultation services common to them. Conclusions. Consistent with reports by other researchers, study data support the need to move beyond equating PC with hospice or EOL care and the notion that EOL is a well-demarcated period of time before death. If professional health care providers assume that PC services are limited to assisting with and helping patients and families prepare for dying, they miss opportunities to provide care considered important to older individuals confronting life-limiting illnesses.

摘要

目的。通过一项针对急性护理医院姑息治疗咨询服务的为期四年的人种学研究中以案例为中心的老年患者数据示例,来说明姑息治疗(PC)与临终(EOL)服务的区别与交叉。方法。定性叙事和主题分析。结果。描述了四种实践模式(临终过渡、预后不确定性、出院计划以及患者/家庭价值观和偏好),并确定了它们共有的姑息治疗咨询服务的潜在结构和沟通模式。结论。与其他研究人员的报告一致,研究数据支持有必要超越将姑息治疗等同于临终关怀或临终护理的观念,以及临终是死亡前一个界限分明的时间段的观念。如果专业医疗服务提供者认为姑息治疗服务仅限于协助并帮助患者及其家人为死亡做准备,那么他们就会错过为面临生命有限疾病的老年人提供被认为重要的护理的机会。

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本文引用的文献

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Heart failure and palliative care: implications in practice.心力衰竭与姑息治疗:实践中的影响
J Palliat Med. 2009 Jun;12(6):531-6. doi: 10.1089/jpm.2009.0010.
2
Confusing categories and themes.令人困惑的类别和主题。
Qual Health Res. 2008 Jun;18(6):727-8. doi: 10.1177/1049732308314930.
3
Meaning and practice of palliative care for nursing home residents with dementia at end of life.临终痴呆养老院居民姑息治疗的意义与实践。
Am J Alzheimers Dis Other Demen. 2008 Aug-Sep;23(4):319-25. doi: 10.1177/1533317508316682. Epub 2008 May 4.
4
"What's your favorite color?" Reporting irrelevant demographics in qualitative research.“你最喜欢的颜色是什么?”定性研究中报告无关的人口统计学信息。
Qual Health Res. 2008 Mar;18(3):299-300. doi: 10.1177/1049732307310995.
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Do palliative consultations improve patient outcomes?姑息治疗会诊能否改善患者预后?
J Am Geriatr Soc. 2008 Apr;56(4):593-9. doi: 10.1111/j.1532-5415.2007.01610.x. Epub 2008 Jan 16.
6
The economic and clinical impact of an inpatient palliative care consultation service: a multifaceted approach.住院姑息治疗咨询服务的经济和临床影响:一种多方面的方法。
J Palliat Med. 2007 Dec;10(6):1347-55. doi: 10.1089/jpm.2007.0065.
7
Defining the role of palliative care in older adults with heart failure.界定姑息治疗在老年心力衰竭患者中的作用。
Int J Cardiol. 2008 Apr 10;125(2):183-90. doi: 10.1016/j.ijcard.2007.10.005. Epub 2007 Nov 26.
8
"I'm not ready for hospice": strategies for timely and effective hospice discussions.“我还没准备好接受临终关怀”:及时且有效进行临终关怀讨论的策略
Ann Intern Med. 2007 Mar 20;146(6):443-9. doi: 10.7326/0003-4819-146-6-200703200-00011.
9
Development and evaluation of the "Advanced Heart Failure Clinical Competence Survey": a tool to assess knowledge of heart failure care and self-assessed competence.“晚期心力衰竭临床能力调查”的开发与评估:一种评估心力衰竭护理知识和自我评估能力的工具。
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What is most important for you to achieve?: an analysis of patient responses when receiving palliative care consultation.对你实现目标而言最重要的是什么:对接受姑息治疗咨询时患者反应的分析。
J Palliat Med. 2006 Apr;9(2):382-8. doi: 10.1089/jpm.2006.9.382.