Wagner Luciane Carniel, Geidel Ariadne Runte, Torres-González Francisco, King Michael Bruce
Departamento de Pesquisa e Pós-Graduação, Centro Universitário Metodista IPA, Porto Alegre, RS, Brazil.
Cien Saude Colet. 2011 Apr;16(4):2077-87. doi: 10.1590/s1413-81232011000400007.
The current study aims to discover the opinions of patients and their (informal and formal) carers concerning the mental health care of individuals with long term schizophrenic disorders within different contexts and cultures. It's a qualitative study with focus groups,in which 6 research centers (from Argentina, Brazil, Chile, Spain, England and Venezuela) participated. Eight focus groups were conducted in each center, totaling 303 individuals in 46 groups. The data were analyzed with the aid of the Qualitative Solutions and Research/Non-numerical Unstructured Data Indexing program (QSR NUD*IST 4.0). The perception regarding the quality of care is influenced by the professional-patient relationship and the availability of resources. Poor quality of care is also perceived as discrimination. People with schizophrenia in general consider themselves to be ostracized by professionals and services and lacking in more humanized care. In the contexts in which community care is less advanced, the complaints center on resources and services that do not meet demands. On the other hand, in more developed contexts criticism centers more on the attitude of the professionals and the professional patient relationship. Over and above the need for resources and services, people with schizophrenia require more humanized health care.
当前的研究旨在了解患者及其（非正式和正式）照料者对于不同背景和文化下长期患有精神分裂症的个体的精神卫生保健的看法。这是一项采用焦点小组的定性研究，有6个研究中心（来自阿根廷、巴西、智利、西班牙、英国和委内瑞拉）参与其中。每个中心进行了8个焦点小组讨论，46个小组共有303人。数据借助定性解决方案与研究/非数字非结构化数据索引程序（QSR NUD*IST 4.0）进行分析。对护理质量的认知受到专业人员与患者关系以及资源可及性的影响。护理质量差也被视为歧视。一般来说，精神分裂症患者认为自己受到专业人员和服务机构的排斥，缺乏更人性化的护理。在社区护理不太发达的背景下，则主要抱怨资源和服务无法满足需求。另一方面，在更发达的背景下，批评更多集中在专业人员的态度和专业人员与患者的关系上。除了对资源和服务的需求之外，精神分裂症患者还需要更人性化的医疗保健。
