Qaddoumi Ibrahim, Unal Ekrem, Diez Blanca, Kebudi Rejin, Quintana Yuri, Bouffet Eric, Chantada Guillermo
Division of Neuro-Oncology, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN, USA.
Childs Nerv Syst. 2011 Nov;27(11):1957-61. doi: 10.1007/s00381-011-1479-9. Epub 2011 May 17.
Information about pediatric survivors of brain tumors in developing countries is scant.
In this study, we aimed to investigate the availability of resources for treatment and long-term follow-up of children with central nervous system tumors in developing countries.
A web-based questionnaire on available services and follow-up of brain tumor survivors was posted at www.cure4kids.org , and registered users were invited to participate.
A total of 140 evaluable responses from developing countries (n = 103) and high-income countries (n = 37) were obtained. There was a significant correlation between gross national income and the availability of services for treatment and follow-up and between patient load and the availability of some services.
The resources for treatment and long-term follow-up of children with brain tumors need to be improved in developing countries.
关于发展中国家脑肿瘤患儿幸存者的信息匮乏。
在本研究中，我们旨在调查发展中国家中枢神经系统肿瘤患儿的治疗资源及长期随访情况。
在www.cure4kids.org网站上发布了一份关于脑肿瘤幸存者现有服务及随访情况的网络调查问卷，并邀请注册用户参与。
共获得了来自发展中国家（n = 103）和高收入国家（n = 37）的140份可评估回复。国民总收入与治疗及随访服务的可获得性之间，以及患者数量与某些服务的可获得性之间存在显著相关性。
发展中国家脑肿瘤患儿的治疗及长期随访资源需要改善。
