Griffith Health Institute, Research Centre for Clinical and Community Practice Innovation, Griffith University, Nathan, Qld, Australia.
J Clin Nurs. 2012 Jun;21(11-12):1632-40. doi: 10.1111/j.1365-2702.2011.03688.x. Epub 2011 May 18.
This study sought to compare two well-known and well-used self-report quality of life questionnaires in terms of completion rates, reliability and assessment of quality of life.
People with dementia have a meaningful experience of quality of life and several disease-specific instruments have been designed to capture self-report assessments.
A quantitative survey design, with a convenience sample of older people with dementia from four long-term care facilities.
Sixty-one participants were recruited for survey on the Dementia Quality of Life questionnaire and the Quality of Life in Alzheimer's Disease questionnaire.
The Quality of Life in Alzheimer's Disease questionnaire had a higher rate of completion (98·4%) than the Dementia Quality of Life questionnaire (68·9%). Those unable to complete the latter measure had significantly greater cognitive impairment (F(1,59) = 30·35, p < 0·001) than those completing the measure. Internal reliability was good for the Quality of Life in Alzheimer's Disease questionnaire (0·86), but there were varying levels found for the five Dementia Quality of Life questionnaire subscales (0·79-0·48). The Quality of Life in Alzheimer's Disease questionnaire was significantly correlated with all the Dementia Quality of Life questionnaire subscales and overall item.
Although it is recognised that there is no superior instrument in assessing quality of life, this study found both the Quality of Life in Alzheimer's Disease questionnaire and Dementia Quality of Life questionnaire to be useful self-report instruments.
Assessment of quality of life should include the perspective of the person with dementia. The Quality of Life in Alzheimer's Disease questionnaire and Dementia Quality of Life questionnaire appear to measure similar aspects of quality of life. Where assessments are sought from participants with more advanced cognitive and functional impairment, it may be favourable to employ the Quality of Life in Alzheimer's Disease questionnaire.
本研究旨在比较两种著名且广泛使用的自评生活质量问卷，评估其完成率、信度和生活质量评估效果。
痴呆症患者对生活质量有深刻的体验，为此设计了几种疾病特异性工具来捕捉自我报告评估。
一项采用方便取样法，对来自四家长期护理机构的 61 名老年痴呆症患者进行的定量调查设计。
对 61 名参与者进行痴呆症生活质量问卷和阿尔茨海默病生活质量问卷的调查。
阿尔茨海默病生活质量问卷的完成率（98.4%）高于痴呆症生活质量问卷（68.9%）。无法完成后者的患者认知障碍程度显著更高（F(1,59) = 30.35，p < 0.001）。阿尔茨海默病生活质量问卷的内部信度良好（0.86），但五个痴呆症生活质量问卷分量表的信度水平不一（0.79-0.48）。阿尔茨海默病生活质量问卷与所有痴呆症生活质量问卷分量表和整体项目均呈显著相关。
尽管人们认识到评估生活质量没有一种优越的工具，但本研究发现阿尔茨海默病生活质量问卷和痴呆症生活质量问卷都是有用的自评工具。
生活质量的评估应包括痴呆症患者的观点。阿尔茨海默病生活质量问卷和痴呆症生活质量问卷似乎都能测量生活质量的相似方面。在评估认知和功能障碍更严重的患者时，使用阿尔茨海默病生活质量问卷可能更有利。
