Marzorati Chiara, Bailo Luca, Mazzocco Ketti, Pravettoni Gabriella
Department of Oncology and Hemato-Oncology, University of Milan, Milan, Italy.
Applied Research Division for Cognitive and Psychological Science, European Institute of Oncology IRCCS, Milan, Italy.
Health Psychol Open. 2018 Dec 5;5(2):2055102918815318. doi: 10.1177/2055102918815318. eCollection 2018 Jul-Dec.
The caregivers' perceptions of the patients' health condition may be biased and induce them to perceive higher needs than patients actually disclose. Our aim was to assess if the level of knowledge and awareness about cancer disease and treatment, and patient participation and assistance differs between caregivers and patients. A descriptive, cross-sectional study was conducted across five countries (Italy, United Kingdom, Spain, France and Germany) on a total of 510 participants who directly (patient) or indirectly (caregiver) faced a cancer diagnosis. Investigating this divergence could help to identify possible difficulties in patient-caregiver relationship, eventually improving patient empowerment.
照顾者对患者健康状况的认知可能存在偏差,从而导致他们察觉到的需求高于患者实际透露的需求。我们的目的是评估照顾者与患者在癌症疾病及治疗的知识和意识水平、患者参与度及获得的协助方面是否存在差异。在五个国家(意大利、英国、西班牙、法国和德国)对总共510名直接(患者)或间接(照顾者)面临癌症诊断的参与者进行了一项描述性横断面研究。调查这种差异有助于识别患者-照顾者关系中可能存在的困难,最终增强患者的自主权。