抑郁症患者的显性和隐性信息需求：对在线抑郁症支持论坛上报告问题的定性研究。
Explicit and implicit information needs of people with depression: a qualitative investigation of problems reported on an online depression support forum.
机构信息
Centre for Mental Health Research, Australian National University, Canberra, ACT, 0200, Australia.
出版信息
BMC Psychiatry. 2011 May 18;11:88. doi: 10.1186/1471-244X-11-88.
BACKGROUND
Health management is impeded when consumers do not possess adequate knowledge about their illness. At a public health level, consumer knowledge about depression is particularly important because depression is highly prevalent and causes substantial disability and burden. However, currently little is known about the information needs of people with depression. This study aimed to investigate the explicit and implicit information needs of users of an online depression support forum.
METHODS
A sample of 2680 posts was systematically selected from three discussion forums on an online depression bulletin board (blueboard.anu.edu.au). Data were examined for evidence of requests for information (reflecting explicit needs) and reports of past or current problems (implicit needs). Thematic analysis was conducted using a data-driven inductive approach with the assistance of NVivo 7, and instances of questions and people reporting particular types of problems were recorded.
RESULTS
A total of 134 participants with personal experience of depression contributed to the data analysed. Six broad themes represented participant queries and reported problems: Understanding depression; disclosure and stigma; medication; treatment and services; coping with depression; and comorbid health problems. A variety of specific needs were evident within these broad thematic areas. Some people (n = 46) expressed their information needs by asking direct questions (47 queries) but the majority of needs were expressed implicitly (351 problems) by the 134 participants. The most evident need for information related to coping with depression and its consequences, followed by topics associated with medication, treatment and services.
CONCLUSIONS
People with depression have substantial unmet information needs and require strategies to deal with the difficulties they face. They require access to high quality and relevant online resources and professionals; thus, there is a need to rectify current gaps in the provision of information and limitations of dissemination. Greater knowledge about depression and its treatment is also needed at the general community level.
背景
当消费者对自身疾病缺乏足够的了解时，健康管理便会受阻。从公共卫生的角度来看，消费者对抑郁症的了解尤为重要，因为抑郁症的发病率很高，会导致严重的残疾和负担。然而，目前人们对抑郁症患者的信息需求知之甚少。本研究旨在调查在线抑郁症支持论坛用户的明确和隐含信息需求。
方法
从在线抑郁症公告板（blueboard.anu.edu.au）上的三个讨论区中系统地选择了 2680 个帖子的样本。数据中检查了信息请求（反映明确需求）和过去或当前问题报告（隐含需求）的证据。使用 NVivo 7 辅助的基于数据的归纳方法进行了主题分析，并记录了问题和报告特定类型问题的实例。
结果
共有 134 名有个人抑郁症经验的参与者为分析数据做出了贡献。六个广泛的主题代表了参与者的查询和报告的问题：理解抑郁症；披露和耻辱感；药物治疗；治疗和服务；应对抑郁症；以及共病健康问题。这些广泛的主题领域内存在各种具体需求。一些人（n = 46）通过直接提问表达了他们的信息需求（47 个查询），但大多数需求（351 个问题）是由 134 名参与者隐含表达的。最明显的信息需求与应对抑郁症及其后果有关，其次是与药物治疗、治疗和服务相关的主题。
结论
抑郁症患者有大量未满足的信息需求，需要策略来应对他们所面临的困难。他们需要获得高质量和相关的在线资源和专业人员；因此，需要纠正当前信息提供方面的差距和传播的局限性。更需要提高普通社区对抑郁症及其治疗的认识。
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