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脊髓损伤患者应对障碍及促进因素的质性研究:伊朗研究。

Barriers to and facilitators of coping with spinal cord injury for Iranian patients: a qualitative study.

机构信息

Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Iran.

出版信息

Nurs Health Sci. 2011 Jun;13(2):207-15. doi: 10.1111/j.1442-2018.2011.00602.x. Epub 2011 May 19.

DOI:10.1111/j.1442-2018.2011.00602.x
PMID:21595815
Abstract

The purpose of the present study was to explore the perspectives and experiences of Iranian patients regarding barriers and facilitators to their ability to cope with spinal cord injury (SCI). A qualitative design, based on the content analysis approach, was used to collect and analyze the experiences of 18 patients with spinal cord injury in two centers in Tehran, Iran. After using purposeful sampling for selection of the participants, semi-structured interviews were held for data collection. Lack of "knowledge", "financial resources", "employment opportunities", "suitable facilities and accessibility" as well as "societal acceptance and support" emerged as barriers; and having "self-confidence", "religious beliefs", "support networks" and "positive thinking" emerged as facilitators in coping with spinal cord injury. Participants believed that with these hindering factors in place, adapting to their new condition had been difficult, therefore they can only manage to adapt partially to their situation. Additional multidisciplinary endeavors are needed to help this group cope adequately and further research is required to influence policy making and legislation processes efficiently.

摘要

本研究旨在探讨伊朗患者对脊髓损伤(SCI)应对能力的障碍和促进因素的看法和经验。采用基于内容分析方法的定性设计,在伊朗德黑兰的两个中心收集和分析了 18 名脊髓损伤患者的经验。在通过有目的的抽样选择参与者后,进行了半结构化访谈以收集数据。缺乏“知识”、“财务资源”、“就业机会”、“合适的设施和可达性”以及“社会接受和支持”是障碍;而具有“自信”、“宗教信仰”、“支持网络”和“积极思考”则是应对脊髓损伤的促进因素。参与者认为,由于存在这些阻碍因素,他们适应新的状况变得很困难,因此只能部分适应他们的情况。需要开展更多的多学科努力来帮助这一群体进行适当的应对,还需要进一步的研究来有效地影响政策制定和立法进程。

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