School of Nursing and Midwifery, Queen's University Belfast, Belfast BT9 7BL, United Kingdom.
Int J Nurs Stud. 2011 Nov;48(11):1384-92. doi: 10.1016/j.ijnurstu.2011.05.006.
Cross-sectional qualitative study.
Interviews with purposeful sample of 25 recently bereaved parents.
Semi-structured in-depth interviews.
Four analytically distinct processes were identified in the responses of parents to the death of a child. These are referred to as 'piloting', 'providing', 'protecting' and 'preserving'. Regardless of individual circumstances, these processes were integral to all parents' coping, enabling an active 'doing' for their child and family throughout the trajectory of their child's illness and into bereavement.
Facilitating the capacity of parents to 'do' is central to coping with the stress and uncertainty of living through the death of a child. The provision of informational, instrumental and emotional support by health care professionals in the context of 'doing' is core to quality palliative care.
横断面定性研究。
对 25 名最近丧亲的父母进行有针对性的访谈。
半结构化深入访谈。
在父母对孩子死亡的反应中，确定了四个分析上不同的过程。这些过程被称为“试探”、“提供”、“保护”和“保存”。无论个人情况如何，这些过程都是所有父母应对的重要组成部分，使他们能够在孩子患病和丧亲期间积极为孩子和家庭“做事”。
促进父母“做事”的能力是应对孩子死亡带来的压力和不确定性的核心。医疗保健专业人员在“做事”的背景下提供信息、工具和情感支持是优质姑息治疗的核心。
