Department of Geriatric Medicine, Ghent University Hospital, Ghent, Belgium.
Department of Geriatric Medicine and Palliative Care Unit, Ghent University Hospital, Ghent, Belgium.
Qual Health Res. 2023 Nov;33(13):1154-1164. doi: 10.1177/10497323231196827. Epub 2023 Oct 4.
Recent literature demonstrates an interdependence between relatives and healthcare providers throughout euthanasia processes. Yet, current guidelines and literature scarcely specify the interactions between healthcare providers and bereaved relatives. The aim of this work consisted of providing an insight into bereaved relatives' experiences (1) of being involved in euthanasia processes and (2) of their interactions with healthcare providers before, during, and after the euthanasia. The research process was guided by the principles of constructivist grounded theory. Nineteen Dutch-speaking bereaved relatives of oncological patients, who received euthanasia at home or in a hospital less than 24 months ago, participated via semi-structured interviews. These interviews were conducted between May 2021 and June 2022. Due to the intensity of euthanasia processes, relatives wanted to be involved as early as possible, in order to receive time, space, and access to professionals' support whilst preparing themselves for the upcoming loss of a family member with cancer. Being at peace with the euthanasia request facilitated taking a supportive attitude, subsequently aiding in achieving a serene atmosphere. A serene atmosphere facilitated relatives' grief process because it helped them in creating and preserving good memories. Relatives appreciated support from healthcare providers, as long as overinvolvement on their part was not occurring. This study advocates for a relational approach in the context of euthanasia and provides useful complements to the existing euthanasia guidelines.
最近的文献表明,在安乐死过程中,亲属和医疗保健提供者之间存在相互依存关系。然而,目前的指南和文献几乎没有具体说明医疗保健提供者和失去亲人的亲属之间的相互作用。这项工作的目的是深入了解失去亲人的亲属的经历:(1) 参与安乐死过程,以及 (2) 在安乐死之前、期间和之后与医疗保健提供者的互动。研究过程遵循建构主义扎根理论的原则。19 名荷兰语母语的肿瘤科患者的失去亲人的亲属参与了研究,他们在不到 24 个月前在家中或医院接受了安乐死。这些采访是在 2021 年 5 月至 2022 年 6 月之间进行的。由于安乐死过程的强度,亲属希望尽早参与,以便在为即将失去癌症患者的家庭成员做准备时,获得时间、空间和专业人员的支持。对安乐死请求的平静接受有助于采取支持态度,从而有助于营造宁静的氛围。宁静的氛围有助于亲属的悲伤过程,因为它帮助他们创造和保留美好的回忆。亲属们很感激医疗保健提供者的支持,只要他们不过分参与。这项研究提倡在安乐死背景下采用关系方法,并为现有的安乐死指南提供有用的补充。