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美国小儿麻痹后综合征简史。

A brief history of postpolio syndrome in the United States.

机构信息

National Rehabilitation Hospital, 102 Irving Street NW, Washington, DC 20010, USA.

出版信息

Arch Phys Med Rehabil. 2011 Aug;92(8):1344-9. doi: 10.1016/j.apmr.2011.03.002. Epub 2011 Jun 12.

DOI:10.1016/j.apmr.2011.03.002
PMID:21658679
Abstract

This is an overview of the history of the late effects of polio in this country from 1980 to the present in the context of the broader and much longer history of acute poliomyelitis. Books, articles, conference proceedings, and other relevant historical resources that dealt with polio-related issues from January 1, 1980, through December 31, 2009, were reviewed. The mean number of articles published per year was calculated for 5-year intervals beginning in 1980; the number of postpolio support groups and polio-dedicated clinics was compiled from directories published annually by Post-Polio Health International at 5-year intervals from 1985 to 2010. Beginning in the mid-1980s, the number of articles published each year increased dramatically, peaking during the years 1995 to 1999 when a mean of 48.2 articles were published each year. This figure steadily declined over the next 14 years. Support groups and clinics showed a similar pattern of rise and fall, with a maximum of 298 support groups and 96 clinics in 1990 and a decline to 131 and 32, respectively, by 2010. During the 1980s and early 1990s, there was a period of optimism that energized research, clinical, and self-help initiatives. As the limits of these efforts became apparent during the late 1990s and early 2000s, resources and activities declined as the postpolio community continued to age and decrease in size. Regardless of these trends, there are still thousands of survivors who continue to require skilled physiatric management as they cope with advancing age and declining function.

摘要

这是一篇综述,概述了自 1980 年以来,在急性脊髓灰质炎这一更为广泛和漫长的历史背景下,该国脊髓灰质炎后遗症的历史。本文回顾了 1980 年 1 月 1 日至 2009 年 12 月 31 日期间出版的有关脊髓灰质炎的书籍、文章、会议记录和其他相关历史资源。计算了 1980 年开始的每 5 年间隔内发表文章的平均数量;根据 1985 年至 2010 年期间每年由国际脊髓灰质炎后健康组织出版的目录,汇编了每 5 年间隔内的后脊髓灰质炎支持团体和脊髓灰质炎专科诊所的数量。从上世纪 80 年代中期开始,每年发表的文章数量大幅增加,在 1995 年至 1999 年期间达到峰值,每年平均发表 48.2 篇文章。此后的 14 年里,这一数字稳步下降。支持团体和诊所的数量也呈现出类似的兴衰模式,1990 年支持团体的数量达到峰值 298 个,诊所的数量达到峰值 96 个,而到 2010 年,分别降至 131 个和 32 个。在 80 年代和 90 年代早期,人们对研究、临床和自助计划充满了乐观情绪。随着这些努力的局限性在 90 年代末和 21 世纪初变得明显,资源和活动减少,因为后脊髓灰质炎社区随着年龄的增长和数量的减少而继续减少。无论这些趋势如何,仍有数千名幸存者需要熟练的物理医学管理,因为他们要应对年龄的增长和功能的下降。

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A brief history of postpolio syndrome in the United States.美国小儿麻痹后综合征简史。
Arch Phys Med Rehabil. 2011 Aug;92(8):1344-9. doi: 10.1016/j.apmr.2011.03.002. Epub 2011 Jun 12.
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Tidsskr Nor Laegeforen. 2001 Dec 10;121(30):3574-7.
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Theodore E. Woodward Award: The devastating backlash of a dread disease: poliomyelitis.西奥多·E·伍德沃德奖:一种可怕疾病的毁灭性后果:小儿麻痹症。
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Health related quality of life in Turkish polio survivors: impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning.土耳其小儿麻痹症幸存者的健康相关生活质量:小儿麻痹症后遗症对健康相关生活质量在功能状态、疼痛严重程度、疲劳以及社会和情感功能方面的影响。
Rev Bras Reumatol Engl Ed. 2017 Jan-Feb;57(1):1-7. doi: 10.1016/j.rbre.2014.12.006. Epub 2015 Mar 10.
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Actual and perceived activity levels in polio survivors and older controls: a longitudinal study.脊髓灰质炎幸存者和老年对照者的实际与感知活动水平:一项纵向研究。
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Polio today: are we on the verge of global eradication?今日的脊髓灰质炎:我们正处于全球根除的边缘吗?
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[Congenital malformations of the brain misinterpreted as sequelae of poliomyelitis].[被误诊为小儿麻痹后遗症的先天性脑畸形]
Z Gerontol Geriatr. 2024 Aug;57(5):376-381. doi: 10.1007/s00391-023-02264-2. Epub 2023 Dec 18.
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The Current State: Epidemiology and Working Toward Eradication.现状:流行病学与消除工作。
Phys Med Rehabil Clin N Am. 2021 Aug;32(3):467-476. doi: 10.1016/j.pmr.2021.02.003. Epub 2021 Apr 29.
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Postpolio Syndrome: A Review of Lived Experiences of Patients.小儿麻痹后遗症:患者生活经历综述
Int J Appl Basic Med Res. 2019 Jul-Sep;9(3):129-134. doi: 10.4103/ijabmr.IJABMR_333_18.
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International Contributions toward the Conquest of Polio.对征服小儿麻痹症的国际贡献。
Ulster Med J. 2019 Jan;88(1):47-54. Epub 2019 Jan 22.
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Functional and environmental factors affecting work status in individuals with longstanding poliomyelitis.影响长期患小儿麻痹症个体工作状态的功能和环境因素。
J Spinal Cord Med. 2012 Jan;35(1):22-7. doi: 10.1179/2045772311Y.0000000048.