Smaldone Arlene, Tsimicalis Argerie, Stone Patricia W
Columbia University School of Nursing, New York, New York 10032, USA.
Res Theory Nurs Pract. 2011;25(2):80-106. doi: 10.1891/1541-6577.25.2.80.
In the United States, rising health care costs have led to discussion about bending the cost curve. To understand the true burden of disease and its treatment, costs of care, including those incurred by patients and their families, must be comprehensively assessed using psychometrically sound instruments. The Resource Utilization Questionnaire (RUQ) is a 21-item self-report questionnaire first developed to measure the costs incurred by families of infants who had required intensive care during the newborn period. The purpose of this article is to describe the conceptualization of resource utilization and costs and other methodological issues in conducting economic analyses, the process of adapting the RUQ for use in children and families with Type 1 diabetes mellitus (T1DM), and the psychometric evaluation to establish content and criterion validity of the instrument. The finalized modified RUQ for T1DM (mRUQ-T1DM) contained 25 items reflecting direct (5 items) and nondirect (3 items) health care, patient/family time (8 items), and patient/family productivity (9 items) costs using a 3-month recall. The mRUQ-T1DM validly measures cost incurred by children and families with T1DM and is easily completed by parents. Furthermore, the mRUQ-T1DM may be adapted for use in other populations using a similar process.
在美国，不断上涨的医疗保健成本引发了关于控制成本曲线的讨论。为了了解疾病及其治疗的真正负担，必须使用心理测量学上合理的工具全面评估护理成本，包括患者及其家庭所产生的成本。资源利用问卷（RUQ）是一份包含21个条目的自填式问卷，最初是为了测量新生儿期需要重症监护的婴儿家庭所产生的成本而开发的。本文的目的是描述资源利用和成本的概念化以及进行经济分析中的其他方法学问题，将RUQ改编用于1型糖尿病（T1DM）儿童及其家庭的过程，以及建立该工具的内容效度和准则效度的心理测量学评估。最终确定的用于T1DM的改良RUQ（mRUQ-T1DM）包含25个条目，反映了使用3个月回忆期的直接（5个条目）和非直接（3个条目）医疗保健、患者/家庭时间（8个条目）以及患者/家庭生产力（9个条目）成本。mRUQ-T1DM有效地测量了T1DM儿童及其家庭所产生的成本，并且家长很容易完成。此外，mRUQ-T1DM可以通过类似的过程改编用于其他人群。
