Sierko Ewa, Werpachowska Maria T, Wojtukiewicz Marek Z
Department of Oncology, Medical University and the Comprehensive Cancer Center, Bialystok, Poland.
Oncol Nurs Forum. 2011 Jul;38(4):E253-9. doi: 10.1188/11.ONF.E253-E259.
PURPOSE/OBJECTIVES: To assess the psychological, physical, and social situations and needs of patients with colorectal cancer (CRC) diagnosed at an advanced stage of the disease.
Quantitative, descriptive.
An urban comprehensive cancer center in northeastern Poland.
50 patients undergoing first-line palliative chemo-therapy.
Participants were asked to fill out an institution-developed questionnaire assessing personal, emotional, physical, and social data.
Psychological, physical, and social characteristics.
The most frequently reported side effects of chemotherapy were asthenia, loss of taste, and nausea and vomiting. In addition, about 54% of patients were unable to work during treatment. Chemotherapy administration resulted in severe or moderate impediment of activities of daily living in 74% of the patients and negatively influenced their financial situation. About 25% of the patients were reluctant to share the news of their disease with their coworkers; however, most revealed their diagnosis to friends and family. The majority (62%) of patients expected help from family members. Nurses provided emotional support to a much lesser extent than patients' immediate relatives. The majority of patients (80%) needed to express their feelings by talking, but only about 30% considered a nurse to be the preferred person with whom to discuss their disease.
Patients with CRC diagnosed at an advanced stage require considerably more emotional, informative, and instrumental support from nurses, doctors, family, other patients, and priests than was anticipated by the authors.
Extending routine history taking via the addition of questions to the proposed questionnaire may help to better recognize a particular patient's situation and unique needs. An increasingly patient-focused approach could improve the individual nursing care in this region of Europe. Ultimately, a multidisciplinary team would be required to meet the needs of patients with CRC undergoing chemotherapy.
目的/目标：评估处于疾病晚期的结直肠癌（CRC）患者的心理、身体和社会状况及需求。
定量、描述性研究。
波兰东北部的一家城市综合癌症中心。
50名正在接受一线姑息化疗的患者。
参与者被要求填写一份由该机构制定的问卷，以评估个人、情感、身体和社会数据。
心理、身体和社会特征。
化疗最常报告的副作用是乏力、味觉丧失、恶心和呕吐。此外，约54%的患者在治疗期间无法工作。化疗导致74%的患者日常生活活动严重或中度受限，并对其经济状况产生负面影响。约25%的患者不愿与同事分享自己患病的消息；然而，大多数患者向朋友和家人透露了自己的诊断。大多数患者（62%）期望得到家庭成员的帮助。护士提供的情感支持比患者的直系亲属少得多。大多数患者（80%）需要通过交谈来表达自己的感受，但只有约30%的患者认为护士是讨论病情的首选对象。
处于晚期的结直肠癌患者比作者预期的需要护士、医生、家人、其他患者和牧师提供更多的情感、信息和实际支持。
通过在建议的问卷中增加问题来扩展常规病史采集，可能有助于更好地了解特定患者的情况和独特需求。在欧洲这个地区，越来越以患者为中心的方法可以改善个性化护理。最终，需要一个多学科团队来满足接受化疗的结直肠癌患者的需求。
