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创伤性脊髓损伤后配偶照顾者的调整和应对:诠释现象学分析。

Adjustment and coping in spousal caregivers following a traumatic spinal cord injury: an interpretative phenomenological analysis.

机构信息

Edinburgh Napier University, UK.

出版信息

J Health Psychol. 2012 Mar;17(2):247-57. doi: 10.1177/1359105311411115. Epub 2011 Jun 27.

DOI:10.1177/1359105311411115
PMID:21708870
Abstract

Semi-structured interviews were conducted with 11 spousal caregivers to people with a traumatic spinal cord injury and were subjected to interpretative phenomenological analysis (IPA). Here, we present two inter-related master themes: (1) coping with the spousal caregiver role; and (2) putting the pieces back together again. Within these, the analysis describes how regular venting of emotion, social support and focusing on the positive aspects of the situation all promoted coping. Adjustment was reportedly hindered by the introduction of paid caregivers as this represented a loss of privacy and power for the participants. The findings are discussed in relation to the wider literature and recommendations for future caregiver support are highlighted.

摘要

对 11 名外伤性脊髓损伤患者的配偶照顾者进行了半结构化访谈,并进行了解释性现象学分析(IPA)。在这里,我们呈现了两个相互关联的主题:(1)应对配偶照顾者角色;(2)重新组合。在这些主题中,分析描述了如何通过定期宣泄情绪、获得社会支持以及关注情况的积极方面来促进应对。据报道,引入有偿照顾者会阻碍调整,因为这代表着参与者失去了隐私和权力。研究结果与更广泛的文献进行了讨论,并强调了对未来照顾者支持的建议。

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