Pennacchini M, Bertolaso M, Elvira M M, De Marinis M G
Institute of Philosophy of Scientific and Technological Activity, University Campus Bio-Medico of Rome, Italy.
Clin Ter. 2011;162(3):e99-e103.
The term Quality of Life (QoL) has been increasingly used in medical and philosophical literatures for the past four decades. The purpose of this article is to analyze how QoL is being used in medicine and in philosophy to understand its current status. In the 1960s and 1970s new technologies raised new questions for clinicians, so they used QoL as a parameter for making decisions in health issues. Consequently, researchers focused their interest on the construction and testing of instruments designed to measure health and QoL. However, all these instruments showed some conceptual and methodological problems that made the use of QoL in medicine difficult. While some researchers considered QoL an "idiosyncratic mystery", others believed that QoL was useful in implementing the patient's point of view into clinical practice and they suggested improving QoL's definition and methodology. In the 1980s, some consequentialist philosophers used QoL to formulate moral judgment, in particular they justified infanticide for some severely handicapped infants, and both euthanasia and suspension of life-sustaining treatment using QoL. In the 1990s, welfarist philosophers opened a new debate about QoL and they associated it with health and happiness. These philosophers developed QoL and those other concepts as subjectivist notions; consequently their definition and their measurements pose challenges. Afterwards researchers' interest in theoretical issues regarding QoL has fallen; nevertheless, physicians have continued to use QoL in clinical practice.
在过去的四十年里,“生活质量”(QoL)一词在医学和哲学文献中越来越多地被使用。本文的目的是分析生活质量在医学和哲学中是如何被使用的,以了解其当前状况。在20世纪60年代和70年代,新技术给临床医生带来了新问题,所以他们将生活质量作为健康问题决策的一个参数。因此,研究人员将兴趣集中在旨在测量健康和生活质量的工具的构建和测试上。然而,所有这些工具都显示出一些概念和方法上的问题,这使得生活质量在医学中的应用变得困难。一些研究人员认为生活质量是一个“独特的谜团”,而另一些人则认为生活质量有助于将患者的观点应用于临床实践,他们建议改进生活质量的定义和方法。在20世纪80年代,一些结果主义哲学家使用生活质量来形成道德判断,特别是他们为一些严重残疾婴儿的杀婴行为、安乐死以及使用生活质量来中止维持生命的治疗行为进行辩护。在20世纪90年代,福利主义哲学家开启了一场关于生活质量的新辩论,并将其与健康和幸福联系起来。这些哲学家将生活质量和其他概念发展为主观主义概念;因此,它们的定义和测量带来了挑战。此后,研究人员对生活质量理论问题的兴趣有所下降;尽管如此,医生们仍继续在临床实践中使用生活质量。