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[整体医学框架下慢性呼吸道疾病生活质量研究的价值]

[The value of studies of quality of life in chronic respiratory tract diseases in the framework of holistic medicine].

作者信息

Farnik-Brodzińska M, Pierzchała W

出版信息

Wiad Lek. 1998;51(7-8):316-20.

PMID:9748885
Abstract

Quality of Life (QOL) is a new area of research evaluating the psychical, functional and psychological components of human life. According to current understanding of health issues the measurement of morbidity or mortality does not estimate the health status and describe the influence of illness on human life. The theoretical framework of Health Related Quality of Life is largely based on a multidimensional perspective of human as physical, psychological and social functioning and well-being, along the WHO definition of health. QOL assessment could be carried out using different psychological methods. There are several questionnaires developed to assess the quality of life in patients. The measurement instruments are generic (used in wide range of health related issues), domain specific (concerning some important outcome such as social support, coping), and disease specific which are used to assess patients with particular health problems. QOL assessment could be used as the measurements in pharmacoeconomics and clinical trials. Polish QOL Initiative Group produce Polish version of existing questionnaires--for example The Asthma Quality of Life Questionnaire was registered in Polish language version. Quality of Life researches facilitate doctors to understand patient's perceiving of the health state and help them to live a fulfilling life.

摘要

生活质量(QOL)是一个新的研究领域,用于评估人类生活的身体、功能和心理组成部分。根据目前对健康问题的理解,发病率或死亡率的衡量并不能评估健康状况,也无法描述疾病对人类生活的影响。健康相关生活质量的理论框架很大程度上基于对人类身体、心理和社会功能及福祉的多维度视角,这与世界卫生组织对健康的定义一致。生活质量评估可以使用不同的心理学方法。有几种用于评估患者生活质量的问卷。测量工具包括通用型(用于广泛的健康相关问题)、领域特定型(涉及一些重要结果,如社会支持、应对方式)和疾病特定型,后者用于评估患有特定健康问题的患者。生活质量评估可作为药物经济学和临床试验中的测量指标。波兰生活质量倡议小组制作现有问卷的波兰语版本——例如,《哮喘生活质量问卷》有波兰语版本登记。生活质量研究有助于医生了解患者对健康状况的认知,并帮助他们过上充实的生活。

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