Mughal Abdul Razzaq, Sadiq Masood, Hyder Syed Najam, Qureshi Ahmad Usaid, A Shah S Salman, Khan Mohammad Asim, Nasir Jamal Abdul
Department of Paediatric Cardiology, The Children's Hospital and Institute of Child Health, Lahore.
J Coll Physicians Surg Pak. 2011 Jul;21(7):398-402.
To assess the socioeconomic status, treatment being offered and the impact of congenital heart disease treatment on families.
Observational study.
The Children's Hospital / Institute of Child Health, Lahore, from 1st March to 31st August 2010.
All patients undergoing a cardiac surgical or angiographic intervention were enrolled. Socioeconomic status was assessed by Kuppuswamy socioeconomic status scale with income group modification. The impact was measured by the source of financing, effect on family financing source and schooling and health of siblings.
Of 211 patients undergoing treatment in the study period, surgery was the definitive treatment in 164 (77.7%) and angiographic intervention in 47 (22.3%) patients. Male to female ratio was 1.5:1. The mean age of the patient was 39.1 + 3.2 months (range 01 day to 15 years). Majority of families belonged to middle (66.4%, n=140) and lower (27%, n=57) socioeconomic class. The mean cost of medicines and disposables was PKR 78378.2 ± 8845.9 (US$ 933.1 ± 105.3) in open heart surgery, PKR 12581 ± 7010.8 (US$ 149.8 ± 83.5) in closed heart surgery and PKR 69091 + 60906 in angiographic interventions. In 63.1% patients, families contributed towards these costs either completely (12.3%) or partly (50.8%) with significant contribution from the hospital. Adverse effect on families ranged from leave without pay to losing jobs or business (46%), and selling their assets (11.3%). It also affected schooling and health of siblings (22.7% and 26.1% respectively).
Majority of children with congenital heart disease belonged to middle and lower socioeconomic status in this study. Main definitive treatment was surgery. The cost of health care facilities posed a marked socioeconomic burden on those families.
评估先天性心脏病患儿家庭的社会经济状况、所接受的治疗以及先天性心脏病治疗对家庭的影响。
观察性研究。
拉合尔儿童医院/儿童健康研究所，2010年3月1日至8月31日。
纳入所有接受心脏外科手术或血管造影介入治疗的患者。采用经收入组修正的库普苏瓦米社会经济地位量表评估社会经济状况。通过融资来源、对家庭融资来源的影响以及兄弟姐妹的教育和健康状况来衡量影响。
在研究期间接受治疗的211例患者中，164例（77.7%）接受了手术作为确定性治疗，47例（22.3%）接受了血管造影介入治疗。男女比例为1.5:1。患者的平均年龄为39.1±3.2个月（范围为1天至15岁）。大多数家庭属于中（66.4%，n = 140）和低（27%，n = 57）社会经济阶层。心脏直视手术中药物和一次性用品的平均费用为78378.2±8845.9巴基斯坦卢比（933.1±105.3美元），闭式心脏手术为12581±7010.8巴基斯坦卢比（149.8±83.5美元），血管造影介入治疗为69091±60906巴基斯坦卢比。在63.1%的患者中，家庭完全（12.3%）或部分（50.8%）承担了这些费用，医院也有很大贡献。对家庭的不利影响包括无薪休假、失去工作或生意（46%）以及出售资产（11.3%）。这也影响了兄弟姐妹的教育和健康（分别为22.7%和26.1%）。
在本研究中，大多数先天性心脏病患儿家庭属于中低社会经济地位。主要的确定性治疗方法是手术。医疗保健设施的费用给这些家庭带来了明显的社会经济负担。
