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“没有我们的参与就没有关于我们的研究”:涉及年轻人的研究的考量因素

'Nothing about us without us': considerations for research involving young people.

作者信息

McDonagh Janet E, Bateman Belinda

机构信息

Department of Paediatric and Adolescent Rheumatology, University of Birmingham, Birmingham Children's Hospital NHS Foundation Trust, Birmingham, UK.

出版信息

Arch Dis Child Educ Pract Ed. 2012 Apr;97(2):55-60. doi: 10.1136/adc.2010.197947. Epub 2011 Jul 29.

DOI:10.1136/adc.2010.197947
PMID:21803922
Abstract

Research development in the adolescent health arena is increasingly called for, given the relative lack of robust data on the health of young people. However, specific issues need to be considered when researching this age group. Such issues include participation of young people in the research process, availability of adolescent-specific data, developmental considerations and the interface between paediatric and adult-orientated healthcare. The aim of this paper is to highlight the importance of participation of young people in research and to discuss the key areas for consideration for practitioners when conducting research involving young people.

摘要

鉴于关于年轻人健康的可靠数据相对匮乏,青少年健康领域的研究发展愈发受到关注。然而,在对这个年龄组进行研究时,需要考虑一些特定问题。这些问题包括年轻人参与研究过程、是否有针对青少年的数据、发育方面的考量以及儿科医疗与成人导向医疗之间的衔接。本文旨在强调年轻人参与研究的重要性,并讨论从业者在开展涉及年轻人的研究时需要考虑的关键领域。

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