University of Toronto, Canada.
Palliat Med. 2011 Sep;25(6):642-9. doi: 10.1177/0269216310395647.
The aim of our study was to design and evaluate the impact on informational satisfaction of a combined story and fact-based educational booklet designed for patients with multiple brain metastases. Phase A evaluated the preference of participants for combined, fact, or story-based writing style. Based on these results, a resource was developed using a combined story and fact-based approach. Patients with newly diagnosed brain metastases and their caregivers read the booklet. Satisfaction was evaluated using the Information Satisfaction Questionnaire and Client Satisfaction Questionnaire. Anxiety was evaluated before and after reading using the State Trait Anxiety Inventory. Ninety-one patients participated in this study. In Phase A, 51% of patients expressed a preference for the combined story and fact-based approach. In phase B, participants expressed high satisfaction for both the informational content and the overall satisfaction towards the pamphlet. The level of anxiety before reading the booklet was lower for caregivers than patients. Anxiety score was increased in the caregiver group after reading the booklet. This was unchanged in the patient group. Both patients and caregivers endorsed the resource. The increase in anxiety in caregivers suggests the tool has been effective in conveying serious prognostic implications.
我们研究的目的是设计并评估一种针对多发性脑转移患者的联合故事和基于事实的教育手册对信息满意度的影响。A 阶段评估了参与者对联合、事实或基于故事的写作风格的偏好。基于这些结果，我们使用了一种联合故事和基于事实的方法来开发资源。新诊断为脑转移的患者及其护理人员阅读了该手册。使用信息满意度问卷和客户满意度问卷评估满意度。使用状态特质焦虑量表在阅读前后评估焦虑。91 名患者参加了这项研究。在 A 阶段，51%的患者表示更喜欢联合故事和基于事实的方法。在 B 阶段，参与者对小册子的信息内容和整体满意度表示高度满意。在阅读小册子之前，护理人员的焦虑程度低于患者。在阅读小册子后，护理人员组的焦虑评分增加，而患者组则没有变化。患者和护理人员都认可了该资源。护理人员的焦虑增加表明该工具有效地传达了严重的预后影响。
