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姑息治疗患者的信息隐瞒: caregiver 新量表的制定与初步研究。

Information concealment in palliative patients: Development and pilot study of a new scale for caregivers.

机构信息

Faculty of Psychology and Speech Therapy, University of Málaga, Málaga, Spain.

Centre of Palliative Care, Girasol Association, Málaga, Spain.

出版信息

Health Soc Care Community. 2022 Nov;30(6):e4504-e4512. doi: 10.1111/hsc.13854. Epub 2022 Jun 1.

DOI:10.1111/hsc.13854
PMID:35648619
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10083995/
Abstract

Previous studies on palliative care have assessed the phenomenon of Information Concealment (IC), confirmed its relevance and emphasised the need to have a scale for its assessment. The aim of this study was to design and validate such an instrument. The sample comprised 150 palliative caregivers (23 men and 127 women). The dimensionality of the items of the Information Concealment Scale for Caregivers (ECOI) was assessed using Exploratory Factor Analysis and an optimal implementation of parallel analysis. Reliability and criterion validity were analysed using sample data. The ECOI comprises three factors: Concealment or dissimulation about the disease, misrepresentation of the real situation and control of the information. The scale has excellent reliability and shows criterion validity. Therefore, the ECOI is a reliable and valid instrument to objectively measure IC among Spanish caregivers in palliative care settings.

摘要

先前有关缓和医疗的研究评估了信息隐瞒现象(IC),证实了其相关性,并强调需要有一个评估其的量表。本研究旨在设计和验证这样的工具。样本包括 150 名姑息护理人员(23 名男性和 127 名女性)。使用探索性因素分析和并行分析的最佳实施方法评估了姑息护理人员信息隐瞒量表(ECOI)项目的维度。使用样本数据分析了可靠性和标准有效性。ECOI 包括三个因素:对疾病的隐瞒或掩饰、对真实情况的歪曲和信息控制。该量表具有极好的信度,且显示出标准有效性。因此,ECOI 是一种可靠且有效的工具,可客观测量西班牙语姑息治疗环境中护理人员的信息隐瞒情况。

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