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自闭症特异性初级保健医疗之家干预。

Autism-specific primary care medical home intervention.

机构信息

Division of General Pediatrics and Fairview Health System, Department of Pediatrics, University of Minnesota, 717 Delaware Street SE, 3rd Floor West, Room 370E, Minneapolis, MN 55414, USA.

出版信息

J Autism Dev Disord. 2012 Jun;42(6):1087-93. doi: 10.1007/s10803-011-1351-5.

DOI:10.1007/s10803-011-1351-5
PMID:21853373
Abstract

Forty-six subjects received primary medical care within an autism-specific medical home intervention ( www.autismmedicalhome.com ) and 157 controls received standard primary medical care. Subjects and controls had autism spectrum disorder diagnoses. Thirty-four subjects (74%) and 62 controls (40%) completed pre and post surveys. Controlling for pre-survey medical home status, subjects had 250% greater odds of receipt of a medical home at the study end compared to controls (p = 0.021). Compared to controls, subjects receiving the intervention reported significantly more satisfaction (p = 0.0004), greater shared decision making (p = 0.0005) and fewer unmet needs (p = 0.067). However, subjects reported no change in family stress (p = 0.204).

摘要

46 名受试者在自闭症特定医疗之家干预措施(www.autismmedicalhome.com)中接受了初级医疗护理,而 157 名对照者接受了标准初级医疗护理。受试者和对照者均被诊断为自闭症谱系障碍。34 名受试者(74%)和 62 名对照者(40%)完成了预调查和后调查。在控制预调查医疗之家状况后,与对照组相比,研究结束时接受医疗之家治疗的受试者的可能性增加了 2.5 倍(p = 0.021)。与对照组相比,接受干预的受试者报告了更高的满意度(p = 0.0004)、更多的共同决策(p = 0.0005)和更少的未满足需求(p = 0.067)。然而,受试者报告家庭压力没有变化(p = 0.204)。

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本文引用的文献

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Medical home services for children with behavioral health conditions.儿童行为健康状况的医疗家庭服务。
J Dev Behav Pediatr. 2010 Feb-Mar;31(2):92-9. doi: 10.1097/DBP.0b013e3181cdabda.
2
Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006.自闭症谱系障碍的患病率 - 美国自闭症与发育障碍监测网络,2006年
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The medical home for children with autism spectrum disorders: parent and pediatrician perspectives.自闭症谱系障碍儿童的医疗之家:家长和儿科医生的观点。
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Emergency Department Utilization Among Youth with Autism Spectrum Disorder: Exploring the Role of Preventive Care, Medical Home, and Mental Health Access.自闭症谱系障碍青少年在急诊科的利用情况:探讨预防保健、医疗之家和心理健康服务获取的作用。
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7
Caring for children with mental health or developmental and behavioural disorders: Perspectives of family health teams on roles and barriers to care.照顾患有心理健康、发育及行为障碍的儿童:家庭健康团队对护理角色及障碍的看法。
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Patient and caregiver experiences at a specialized primary care center for autistic adults.自闭症成人专科初级保健中心的患者和护理人员体验。
J Comp Eff Res. 2020 Nov;9(16):1131-1140. doi: 10.2217/cer-2020-0155. Epub 2020 Sep 11.
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The Patient-Centered Medical Home: Mental Health and Parenting Stress in Mothers of Children With Autism.以患者为中心的医疗之家:自闭症儿童母亲的心理健康和育儿压力。
J Prim Care Community Health. 2020 Jan-Dec;11:2150132720936067. doi: 10.1177/2150132720936067.
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A scoping review and assessment of essential elements of shared decision-making of parent-involved interventions in child and adolescent mental health.一项关于儿童和青少年心理健康中家长参与干预的共同决策基本要素的范围审查和评估。
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A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.2005 - 2006年美国儿童自闭症谱系障碍的医疗保健经历及家庭影响的全国概况。
Pediatrics. 2008 Dec;122(6):e1149-58. doi: 10.1542/peds.2008-1057.
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Coping over time: the parents of children with autism.长期应对:自闭症儿童的父母
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