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关爱自闭症患者的医疗保健:文献综述

Autism-Friendly Healthcare: A Narrative Review of the Literature.

作者信息

Hamdan Samar Z, Bennett Amanda

机构信息

Department of Pediatrics, College of Medicine and Surgery, King Abdulaziz University, Jeddah, SAU.

Division of Developmental and Behavioral Pediatrics, Children's Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, USA.

出版信息

Cureus. 2024 Jul 8;16(7):e64108. doi: 10.7759/cureus.64108. eCollection 2024 Jul.

Abstract

Disparities in healthcare access, delivery, and outcomes exist between autistic and non-autistic individuals. Autism-friendly healthcare initiatives aim to facilitate and improve the healthcare experience of autistic individuals by addressing commonly encountered challenges. While there is no consensus regarding the definition of autism-friendly healthcare, in this narrative review, we examine previously published research to determine the most important components of autism-friendly healthcare. Patient-related factors, provider-related factors, and system-related factors should be addressed. Proactivity, flexibility, and collaboration should guide the process of transforming the healthcare system. Finally, multiple strategies can be utilized as appropriate to the setting and individuals.

摘要

自闭症患者与非自闭症患者在医疗服务的可及性、提供方式和结果方面存在差异。关爱自闭症的医疗举措旨在通过解决常见挑战来促进和改善自闭症患者的就医体验。虽然对于关爱自闭症的医疗的定义尚无共识,但在本叙述性综述中,我们审视先前发表的研究,以确定关爱自闭症的医疗中最重要的组成部分。应关注与患者相关的因素、与医疗服务提供者相关的因素以及与医疗系统相关的因素。主动性、灵活性和协作应指导医疗系统转型的过程。最后,可根据具体情况和个体适当地采用多种策略。

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