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代孕决策的儒家生命伦理学:其社群主义根源。

The Confucian bioethics of surrogate decision making: its communitarian roots.

机构信息

City University of Hong Kong, Kowloon, Hong Kong.

出版信息

Theor Med Bioeth. 2011 Oct;32(5):301-13. doi: 10.1007/s11017-011-9191-z.

DOI:10.1007/s11017-011-9191-z
PMID:21858670
Abstract

The family is the exemplar community of Chinese society. This essay explores how Chinese communitarian norms, expressed in thick commitments to the authority and autonomy of the family, are central to contemporary Chinese bioethics. In particular, it focuses on the issue of surrogate decision making to illustrate the Confucian family-grounded communitarian bioethics. The essay first describes the way in which the family, in Chinese bioethics, functions as a whole to provide consent for significant medical and surgical interventions when a patient has lost decision-making capacity. It is argued that the practice of not having an established order for surrogate decision makers (e.g., spouse, children, and then parents), as it is done in the United States, reflects the acknowledgment that the family as a social reality cannot be reduced to a stereotype of the appropriate order of default decision makers. This description of the family as being in authority to make surrogate decisions for an incompetent family member is enriched by an elaboration of the differences among the concepts of patient autonomy, family autonomy, and moral autonomy. The Chinese model, as well as the Confucian communitarian life of families, engages a family autonomy that is supported by a Confucian understanding of moral autonomy, rather than individual autonomy. Finally, the issue of possible conflicts between patient and family interests in relation to a patient's past wishes in the Chinese model is addressed in light of the role of the physician.

摘要

家庭是中国社会的典范社区。本文探讨了中国社群主义规范如何将对家庭权威和自主性的深厚承诺表达出来,成为当代中国生命伦理学的核心。特别是,它侧重于代理决策的问题,以说明基于儒家家庭的社群主义生命伦理学。本文首先描述了在中国生命伦理学中,家庭如何作为一个整体,在患者失去决策能力时,为重大的医疗和手术干预提供同意。有人认为,在美国,没有为代理决策者(例如配偶、子女,然后是父母)建立既定顺序的做法,反映了这样一种认识,即家庭作为一种社会现实,不能简化为适当的默认决策者顺序的刻板印象。对家庭作为为无行为能力的家庭成员做出代理决策的权威的这种描述,通过阐述患者自主性、家庭自主性和道德自主性之间的区别而得到丰富。中国模式以及家庭的儒家社群主义生活方式所采用的家庭自主性,得到了对道德自主性的儒家理解的支持,而不是个人自主性。最后,根据医生的角色,针对中国模式中患者过去意愿与患者和家庭利益之间可能发生冲突的问题进行了讨论。

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The Confucian bioethics of surrogate decision making: its communitarian roots.代孕决策的儒家生命伦理学:其社群主义根源。
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本文引用的文献

1
The family and harmonious medical decision making: cherishing an appropriate Confucian moral balance.家庭与和谐的医疗决策:珍视恰当的儒家道德平衡。
J Med Philos. 2010 Oct;35(5):573-86. doi: 10.1093/jmp/jhq046. Epub 2010 Sep 20.
2
How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study.绝症患者在丧失决策能力时如何让他人为其做决策?一项纵向研究。
J Am Geriatr Soc. 2007 Dec;55(12):1981-8. doi: 10.1111/j.1532-5415.2007.01473.x. Epub 2007 Nov 20.
3
Informed consent in Texas: theory and practice.
老年中国患者及其家庭照顾者对维持生命治疗的偏好和态度。
Clin Interv Aging. 2023 Mar 23;18:467-475. doi: 10.2147/CIA.S395128. eCollection 2023.
4
A dyadic advance care planning intervention for people with early-stage dementia and their family caregivers in a community care setting: a feasibility trial.以社区护理环境为背景,针对早期痴呆症患者及其家庭照顾者的双相式预先医疗照护计划干预:一项可行性试验。
BMC Geriatr. 2023 Mar 1;23(1):115. doi: 10.1186/s12877-023-03815-3.
5
How Chinese psychiatrists see and manage stigmatisation of psychiatric patients: a qualitative study in Hong Kong.中国精神科医生如何看待和管理精神科患者的污名化:一项在香港的定性研究。
Evid Based Ment Health. 2019 May;22(2):51-55. doi: 10.1136/ebmental-2018-300078. Epub 2019 Mar 28.
6
Advance directives: cancer patients' preferences and family-based decision making.预先指示:癌症患者的偏好与基于家庭的决策制定
Oncotarget. 2017 Jul 11;8(28):45391-45398. doi: 10.18632/oncotarget.17525.
德克萨斯州的知情同意:理论与实践。
J Med Philos. 2004 Apr;29(2):237-52. doi: 10.1076/jmep.29.2.237.31503.
4
Observations of physician, patient and family perceptions of informed consent in Houston, Texas.对德克萨斯州休斯顿医生、患者及家属对知情同意的看法的观察。
J Med Philos. 2004 Apr;29(2):225-36. doi: 10.1076/jmep.29.2.225.31504.
5
Strategic ambiguities in the process of consent: role of the family in decisions to forgo life-sustaining treatment for incompetent elderly patients.同意过程中的策略性模糊:家庭在无行为能力老年患者放弃维持生命治疗决策中的作用。
J Med Philos. 2004 Apr;29(2):207-23. doi: 10.1076/jmep.29.2.207.31507.
6
Truth telling in medicine: the Confucian view.医学中的讲真话:儒家观点。
J Med Philos. 2004 Apr;29(2):179-93. doi: 10.1076/jmep.29.2.179.31502.
7
Doctor-family-patient relationship: the Chinese paradigm of informed consent.医生-家属-患者关系:中国的知情同意范式
J Med Philos. 2004 Apr;29(2):149-78. doi: 10.1076/jmep.29.2.149.31506.
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Consent to medical treatment: the complex interplay of patients, families, and physicians.医疗同意书:患者、家庭与医生之间的复杂互动
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Reconsidering surrogate decision making: Aristotelianism and Confucianism on ideal human relations.重新审视替代决策:亚里士多德主义与儒家思想中的理想人际关系
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