Norwegian Centre for Integrated Care and Telemedicine, University Hospital of North Norway, Tromsø, Norway.
Qual Health Res. 2012 Feb;22(2):174-88. doi: 10.1177/1049732311420736. Epub 2011 Aug 25.
Although a considerable body of research has described the implications of parental mental illness, the perspectives of children and adolescents have rarely been addressed. In this article, I explore adolescents' experiences in everyday life, based on an action-oriented study of a Norwegian online self-help group for adolescents (aged 15 to 18) with mentally ill parents. The analysis was conducted through participant observation of the group for 2 years. The adolescents experienced a variety of difficult challenges related to their parent's mental illness: lack of information and openness; unpredictability and instability; fear; loneliness; and loss and sorrow. However, they also discussed strategies for active management of the challenges arising from the family situation. I argue that these adolescents can be understood as vulnerable as well as active participants in managing their everyday lives. I emphasize the importance of including perspectives of children and adolescents in further research so as to improve health care for families with parental mental illness.
尽管有相当多的研究描述了父母精神疾病的影响,但很少涉及儿童和青少年的观点。在本文中,我基于对挪威一个面向行动的在线自助小组(年龄在 15 至 18 岁之间)的研究,探讨了青少年在日常生活中的体验,该小组的父母患有精神疾病。通过对该小组进行为期 2 年的参与式观察,进行了分析。青少年们经历了与父母精神疾病相关的各种困难挑战:缺乏信息和开放性;不可预测性和不稳定性;恐惧;孤独;以及失落和悲伤。然而,他们也讨论了应对家庭情况带来的挑战的积极策略。我认为,这些青少年可以被理解为既是脆弱的,也是积极参与管理日常生活的参与者。我强调了在进一步研究中纳入儿童和青少年观点的重要性,以便改善父母患有精神疾病的家庭的医疗保健。